Table 2.
Patient Engagement.
| Patient engagement | ||
|---|---|---|
| Uses | Benefits | Quotes |
| As an education or memory tool for the patient. |
|
“Because I know when the doctors come in and they're telling you all about what happened and that, things can get a bit overwhelming at first and then if you've recorded it, you can play it back later and you might get a better understanding.” (P19) “We’ve had many meetings and if I’d recorded most of them now, I would probably be able to reflect back and go this is what he said during this time and everything.” (P7) “Yeah, because my knees hyperextend, and so they were just giving me pointers on how not to allow them to hyperextend.” (P3) |
| To enable shared listening within the patient's social network. |
|
“It's very helpful to family members as to what's happening because doctors aren't always available when family come in.” (P1) “If I’d recorded it, I could have then gone to my niece who's a nurse and gone in real words ‘what does this mean?'” (P09) |
| To facilitate patient control over their health issues and care. |
|
“Just to have that recording for later use. I never expected that video to be used so much as what it has been by multiple specialists afterwards.” (1) “So, it does help to monitor my disease, and helps to share what is happening, with other specialists.” (P2) “Because you're not always going to have the same physio so you can ask them ‘hey, can we record this so if I ever need this sort of thing done again I could show them what you did’.” (P14) “I think, with nurses and doctors, because sometimes things get said and then different things come back. So I've been instructed by my mother, if you're not happy with someone, I'm recording this conversation.” (P11) |
| To hold clinicians accountable. |
|
“If they know that they’re recorded, like I said before they will hopefully give more elaborate and proper answers and take you more seriously, even next time when you see them.” (P2) |
| Concerns | Risks | Quotes |
| That recordings will replace current practices. |
|
“I'm not really [technology] literate, you might say, doing that kind of thing.” (P18) “Probably something written, yeah. Now thinking on it, yeah, that would probably be the way to go.” (P7) |