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. Author manuscript; available in PMC: 2024 Sep 1.
Published in final edited form as: Am J Med Genet C Semin Med Genet. 2023 Aug 3;193(3):e32058. doi: 10.1002/ajmg.c.32058
Social Attention Processing Speed Receptive Vocabulary Single-Word Reading
Number of parents completing 8 8 9 8
Overall experience (M, SD, range)
(1=extremely positive to 5=extremely negative)
1.9 (0.8, 1–3) 2.0 (0.8, 1–3) 2.1 (1.0, 1–4) 2.9 (1.3, 1–5)
Difficulty (M, SD, range)
(1=extremely easy to 5=extremely hard)
2.0 (0.9, 1–4) 2.5 (1.5, 1–5) 2.7 (1.0, 2–4) 3.3 (1.7, 1–5)
Device and webcam type (M, SD, range)
(webcam: internal or external)
6 Laptop
1 PC/Mac
1 Did not report
7 Laptop
1 PC/Mac
8 Laptop
1 PC/Mac
7 Laptop
1 PC/Mac
Sitting during evaluation 6 Yes
2 No
7 Yes
1 No
7 Yes
1 No
5 Yes
3 No
Sensory-related movements during evaluation 2 Yes
6 No
2 Yes
6 No
4 Yes
5 No
5 Yes
3 No
Breaks 8 No 8 No 8 No
1 One break after each segment
8 No
Look away from screen
(1=Very often to 6=No looking away)
3.8 (2.3, 1–6) 3.0 (2.1, 1–6) 3.8 (1.7, 2–6) 3.4 (2.2, 1–6)
Cover or touch face
(1=Very often to 5=No covering or touching)
4.1 (1.1, 2–5) 4.1 (0.8, 3–5) 3.3 (1.4, 2–5) 3.5 (1.5, 1–5)
End video early 8 No 8 No 9 No 8 No
Unexpected noise during evaluation 5 No noise
3 One unexpected noise
7 No noise
1 five+ occurrences
7 No noise
2 One unexpected noise
6 No noise
2 One unexpected noise
Adjust lighting during evaluation 8 No adjustments 8 No adjustments 9 No adjustments 8 No adjustments
Connection problems 4 No
2 One occurrence
2 Two or three occurrences
8 No 9 No 7 No
1 One occurrence
Overall attention
(1=excellent to 3=average to 5=very poor)
1.9 (1.2 (1–4) 2.4 (1.3, 1–4) 2.2 (1.2, 1–4) 2.5 (1.5, 1–5)
Physical assistance 4 None
1 One time
3 Most of the time
3 None
1 One time
1 Part-time
3 Most of the time
3 None
2 Part-time
3 Most of the time
1 Did not report
3 None
4 Part-time
1 Most of the time
Gestural assistance 5 None
1 One time
2 Part-time
3 None
4 Part-time
1 Most of the time
5 None
3 Part-time
1 Did not report
4 None
3 Part-time
1 Most of the time
Verbal assistance 4 None
2 One time
2 Most of the time
4 None
1 One time
1 Part-time
2 Most of the time
3 None
1 One time
2 Part-time
2 Most of the time
1 Did not report
3 None
1 One time
3 Part-time
1 Most of the time
Paradigm relevance (M, SD, range)
(1=highly relevant to 4=not relevant)
1.8 (0.4, 1–2) 1.8 (.07, 1–3) 1.2 (0.4, 1–2) 2.3 (0.9, 1–3)
Quality of audio
(1=very clear to 4=not clear)
1.1 (0.3, 1–2) 1 (0) 1 (0) 1.3 (0.4, 1–2)
Quality of video / pictures / words
(1=high, 2=medium, 3=low)
1.3 (0.5, 1–2) 1.4 (0.7, 1–3) 1 (0) 1.1 (0.3, 1–2)
Timing of administration
(1=very fast to 3=neither fast or slow to 5=very slow)
2.6 (0.7, 1–3) 2.3 (0.9, 1–3) 2.0 (0.8, 1–3) 2.5 (0.8, 1–3)

Note. Two NDGS participants who were recruited to give feedback on the neurobehavioral surveys gave no feedback or only provided feedback for one performance paradigms due to life stress. As a result, only 8–9 participants completed the performance paradigms as part of pilot testing. All of these were participants who required parental support with parents completing the post-evaluation questionnaire.