Table 1.
Research stakeholders | Transversal themes | Defining and related concepts |
---|---|---|
Research team Residents and patients Caregivers Staff Facilities and centers Ethics review committees Managers Management and regional authorities Research networks and groups Funding agencies and institutes Foundations Trainees |
*Alignment | Fit between project objectives and the perception and needs of stakeholders |
Appropriation | Project ownership, mobilization, buy-in, local leadership and championing | |
Collaboration | Interdisciplinary work, team, | |
Communication and trust | Relationship, positive perception | |
Ethics | Ethical issues and considerations, capacity, consent (including proxy), autonomy, power of attorney, privacy, confidentiality | |
Fragmentation | Isolation, centralization, network, coordination | |
*Funding | Grants, securing funds, costs for research | |
Research stages | *Governance | Central authority, administrative and operations rules, corporate responsibility |
Study planning and protocol Study design and methods Funding Ethics approval Facility or center recruitment Individual participant recruitment Consent Intervention Data collection and outcomes Analyses Knowledge transfer Sustainability Training | ||
Heterogeneity | Variability in population and centers, personalization, adaptability, adjustments, feasibility and logistics with specific population | |
Human resources | Staff shortage, staff turnover | |
Inefficiency | Duplication, redundancy, delays, friction, and obstacles | |
Information technologies | Implementation and availability of technology, digital data infrastructure | |
*Legal and regulations | Legislation, statutes, legal protection | |
Material resources | Physical space, equipment | |
*Reputation | Public perception, threats to reputation | |
Standardization | Harmonization, consensus, guidelines, best practices, simplification | |
Training | Knowledge, lack of knowledge, uncertainty |
Notes. *These themes were identified in conducting the systematic review