Table 3.

Child and caregiver descriptive characteristics at T0 separated by group.

Variable	IG (n = 21)	CG (n = 11)
Respondent gender
Female	17 (81.0)	2 (18.2)
Male	4 (19.0)	9 (81.8)
Mean respondent age at questionnaire completion (SD)	34.6 (5.2)	38.4 (4.7)
Respondent education
Primary school, secondary school/secondary modern	5 (23.8)	–
High school	3 (14.3)	1 (9.1)
Completed training	7 (33.3)	2 (18.2)
University degree (Bachelor, Master, Doctorate)	5 (23.9)	4 (36.4)
Other	1 (4.8)	4 (36.4)
Respondent family status
Single	3 (14.3)	–
Married	15 (71.4)	10 (90.9)
Living in a steady partnership	2 (9.5)	1 (9.1)
Divorced, separated	1 (4.8)	–
Respondent employment status
Employee full-time	4 (19.0)	2 (18.2)
Employee part-time	9 (42.8)	4 (36.4)
Civil servant	–	1 (9.1)
Self-employed	1 (4.8)	–
Not gainfully employed or capable of gainful employment	4 (19.0)	3 (27.3)
Other	2 (9.5)	–
Work absenteeism (to provide child's care)	4 (19.0)	3 (27.3)
Child gender
Female	9 (42.9)	6 (54.5)
Male	12 (57.1)	5 (45.5)
Child age at questionnaire completion
1–3 years	7 (33.3)	3 (27.3)
3–12 years	13 (61.9)	7 (63.6)
12–18 years	1 (4.8)	1 (9.1)
Mean time between diagnosis and T0-interview in years (SD)	3.79 (2.22)	4.82 (3.44)
Number of healthcare providers involved in child's care
2–5	7 (33.3)	1 (9.1)
6–10	9 (42.9)	7 (63.6)
11–15	1 (4.8)	2 (18.2)
>15	2 (9.5)	1 (9.1)
Health insurance
Statutory	16 (76.2)	10 (90.9)
Statutory with additional insurance	4 (19.0)	–
Private	–	1 (9.1)
Unplanned medical and therapeutic care	7 (33.3)	5 (45.5)
Primary language spoken at home
German	13 (61.6)	10 (90.9)
Other	7 (38.4)	1 (9.1)

Not all participants completed all questions. All differences between groups were non-significant.