Public health measure 2: Isolation | Study features | Outcomes and findings | Translational steps |
Systematic reviews, guidelines | |||
WHO 2021# Citation type: GL Actions for consideration in the care and protection of vulnerable populations from COVID‐19; interim guidance 13th October 2021; At: WPR-DSE-2020-021-eng.pdf (who.int) Public health measure: Isolation, and also maps onto quarantine, crowd avoidance, and general PD Mapping to: Uptake, acceptability, adherence, feasibility Mapping to: Theme 2: recipients of public communication: audience, setting and equity Theme 3: support for individual and population behavioural changes Theme 4: community engagement to support communication Theme 5: public trust and perceptions |
Overview and aim: To provide guidance on care and protection of vulnerable populations during COVID‐19 Type of study and data: GL; rapid literature search and guideline development process Method: GL was developed based on a review of relevant literature/guidance on vulnerable populations. Recommendations decided through group consensus Included disease(s): COVID‐19 Timing: Revised October 2021; no further information specific to timing Countries included: Across‐country; developed by WHO Regional Office for the Western Pacific Intervention or phenomenon of interest: To strengthen the care & protection of vulnerable groups from community transmission during COVID‐19 Population addressed in GL: vulnerable populations defined as those experiencing any condition resulting in inequitable access to resources and increased likelihood of adverse health outcomes of COVID‐19. This includes (but not limited to): people living in overcrowded housing, collective sites, informal settlements or slums, or experiencing homelessness; people who have been forcibly displaced, migrant workers; those in rural and remote locations; people living in poverty; people with disability and those living in closed facilities; those adversely affected by the digital divide; and people affected by intersecting, accumulating or other vulnerabilities. Quality assessment: AGREE II: scope and purpose 86.1%; stakeholder involvement 25%; rigour of development 18.8%; clarity of presentation 77.78%; applicability 8.33%; editorial independence 50% Funding source: Not reported |
Reported on: Guidance for the general population may not be feasible for vulnerable groups. Guidance here presents options for ensuring that recommended measures are accessible and appropriate for vulnerable populations; this can not only ensure more equitable access but also that COVID‐19 is controlled in vulnerable populations (which affects the health of the whole population). Findings summarised below focus on communication issues related to physical distancing barriers and mitigation of these for vulnerable groups. Some population groups may have less agency to comply with PD recommendations. Potential barriers impacting PD adherence/uptake include:
Potential strategies for mitigating barriers include:
Longer‐term mitigation strategies might include advocating for provision/expansion of paid sick leave; promoting intersectoral action to deploy and expand safety nets (e.g. cash transfers) to provide temporary relief to affected households; advocating for adequate housing; and advocating to prevent charges or fees for breaking quarantine where people are leaving dangerous households, or for those without adequate housing. Other relevant public communication activities are focused on the following:
For people with disabilities:
Community engagement
Recommendations: Prevention and containment measures for the general population need to be adapted and supported in different ways for people with different vulnerabilities. This can include a range of communication, information, training and practical supports to help to mitigate the risk of COVID‐19 or of severe disease and to help to ensure more equitable health outcomes across the population. |
Communication purpose: May be useful for identifying barriers and mitigation strategies for vulnerable communities in terms of prevention and containment of COVID‐19. Also provides guidance on communication strategies and features that may usefully inform tailoring of public health communications to differentially vulnerable groups within populations. Related to review questions: Identifies several factors which may create vulnerability in different groups and so increase their risk of poor outcomes related to COVID‐19. Provides a range of strategies, both material (practical) and communication‐related, that may be used with the aim of redressing the imbalances or inequalities faced by many vulnerable populations. Implementation of such strategies may help to reduce barriers to uptake of preventive measures and so improve accessibility, feasibility and adherence to physical distancing measures. |
Cardwell 2021#^ Citation type: SR (rapid) Public health measure: Isolation, and also maps onto quarantine, and school measures Mapping to: Adherence Mapping to: Theme 3: support for individual and population behavioural changes |
Overview and aim: To identify strategies to support people in isolation or quarantine for COVID‐19 and to assess effectiveness of strategies during respiratory pathogen pandemics to support and improve adherence to these measures Type of study and data: SR; international guidance documents (WHO, ECDC from 19 countries); rapid review of primary studies (n = 1, survey) Inclusion and exclusion criteria: Included: support for people in isolation or quarantine, respiratory viruses e.g. SARS, MERS Excluded: non‐respiratory pathogens or non‐pandemic settings Participant features and numbers, sampling details: General populations across 19 countries; no specific groups noted, although some countries may target support to vulnerable groups or those already receiving state aid. Two primary studies (same dataset): 1) 257 families, 49% under 12 years, 54% male; 2) 133 households Included disease(s): Respiratory diseases e.g. SARS, MERS, influenza Timing: Search up to January 2021, literature limited to 2000 onwards. No further information related to timing of the pandemic or related communications Countries included: International guidance from Austria, Australia, Belgium, Canada, Denmark, England, Finland, France, Iceland, Ireland, Netherlands, New Zealand, Northern Ireland, Norway, Scotland, Singapore, Sweden, Switzerland, Wales Rapid literature review: Australia All high‐income countries Intervention or phenomenon of interest: Support (any public health guidance or measures) for isolation or quarantine measures Quality assessment: 5/11 AMSTAR: [2. Single screening and data extraction only (second reviewer checked extracted data); 5. No excluded studies reported and included not very clear; 6. Characteristics of included studies not clearly reported; 8. Quality not incorporated into findings/conclusions; 10. Publication bias not assessed; 11. No COI included studies reported] Funding source: This research was funded in part by the Health Research Board under grant no. HRB‐CICER‐2016‐1871. |
Reported on: Support measures from 19 countries were analysed and identified 5 categories of support. Psychological, addiction and safety support measures:
Essential needs support measures:
Information:
Financial support:
One study reported different measures put in place to support people during isolation/quarantine for H1N1 in Australia, with positive cases in classrooms the trigger for school closures and quarantine.
Recommendations: Across countries there is variation in the type and intensity of support offered to people undertaking isolation or quarantine measures to protect public health during the COVID‐19 pandemic. Some countries target support to vulnerable groups; and many countries leverage support during the pandemic from existing services rather than creating new structures and services to provide such support. Most services are reactive, requiring individuals to initiate the support, although some proactively target vulnerable (medically or financially) populations. As well as support for isolation and quarantine, many countries have in place punitive measures for lack of adherence. Adherence to measures may be influenced by the culture in which the measures are implemented. Adherence to isolation and quarantine measures may be improved by better knowledge of the measures and their rationale, and provision of financial support and essential supplies. Providing consistent and factual information may promote adherence to measures; warning people about misinformation and addressing inaccuracies or conspiracies in available information is similarly important. Information and messages emphasising the supports that will be provided should isolation or quarantine be needed are beneficial, so that people know what is available as well as how to access supports, should they be needed. Framing messages positively in terms of the benefits for society and for themselves and communicating to promote solidarity and the altruistic nature of adherence, may also improve adherence. |
Communication purpose: May inform the purpose(s) and range of supports available for people undertaking isolation or quarantine. May also inform communication strategies to inform individuals and communities about the supports available to them, including what these are, who is eligible, and how to access them, should they be needed. Related to review questions: Different supports are needed for people undertaking isolation/quarantine. These range from information and mental health services to access to essential supplies, PPE and financial support. Supports may vary in intensity (comprehensiveness) and target (generally or to specific vulnerable populations). Clear, consistent information about isolation and quarantine measures, and their rationale and features (e.g. duration, what is required), is needed to help people know what to do and how to adhere to the measures. Information is also needed about what supports for isolation and quarantine are available, and how, where and who can access these supports, so that people are clear about the options in place and what to do if the situation requires it. Information may be consumed via multiple sources and communicated via different media, such as websites and helplines, information pamphlets and portals, and mobile phone apps. Financial insecurity is a major contributor to lack of adherence, particularly for those of lower socioeconomic status. Lack of suitable accommodation and essential supplies are further barriers, as are inconsistent information, stress and stigma associated with quarantine. |
Chu 2020#^ Citation type: SR Public health measure: Isolation, and also maps onto quarantine Mapping to: Acceptability, adherence Mapping to: Theme 1: features of public communication: content, timing and duration, and delivery Theme 3: support for individual and population behavioural changes Theme 4: community engagement to support communication Theme 5: public trust and perceptions Theme 6: distancing measures in schools and workplaces |
Overview and aim: To identify social consequences of mass quarantine (measures that restrict physical contacts and mobility of 10,000 or more people or all residents in a specific jurisdiction) during infectious disease outbreaks; and to identify strategies to mitigate negative social impacts of movement restrictions for COVID‐19 Type of study and data: SR; qualitative, quantitative and mixed methods studies; N = 15 (6 qualitative, 6 quantitative, 1 mixed‐methods, 2 ethical) Surveys (telephone, web‐based, mail; cross‐sectional), interviews and focus group methods and evidence synthesis (for ethical studies). Inclusion and exclusion criteria: Included: Social impacts of mass quarantine during infectious disease outbreaks; empirical research Excluded: Studies without peer‐reviewed original empirical evidence (e.g. thesis, book chapters and reviews) or focusing only on epidemiological consequences of mass quarantine (e.g. estimates of infection, disease rates/risks) Participant features and numbers, sampling details: Sample sizes ranged from small numbers of key informants (e.g. n = 9 to 42) to larger samples up to approximately 1000 people responding to surveys. Participants included residents of affected villages, regions, or cities, community leaders and key informants for organisations and communities, healthcare workers, printing company workers and university faculty. Included disease(s): SARS (8 studies), EVD (4), COVID‐19 (2), H1N1/influenza (1) Timing: Searches inception to April 9, 2020 Eight studies focused on 2003 SARS outbreak; 4 on 2014‐16 EVD outbreak; 1 on 2009‐2010 H1N1 outbreak; 2 on 2020 COVID‐19 outbreak. Quarantine range: 7 days to 1 month; not specified in 3 studies, not applicable in a further 2 studies Countries included: SARS outbreak Canada, China, across‐countries (8 studies): EVD Sierra Leone and Liberia (4), COVID‐19 China and multiple countries (2), H1N1/influenza Canada (1) Country income tended towards high and upper‐middle income (SARS, H1N1, COVID‐19); and low income for EVD. Intervention or phenomenon of interest: Social consequences of mass quarantine, and strategies to mitigate negative effects Quality assessment: AMSTAR 7/11: [5. No excluded studies list provided; 8. Quality assessment not integrated into most findings; 10. Publication bias not assessed; 11. No COI for included studies] Funding source: WT/Wellcome Trust/United Kingdom |
Reported on: 6/15 studies were rated as low quality, 9/15 as high quality; with seven consequences of mass quarantine identified. Psychological distress (11 studies):
Heightened communication inequalities (9 studies):
Food insecurity (8 studies):
Economic challenges (7 studies):
Diminished access to healthcare (6 studies):
Disrupted education (4 studies):
Gender inequality and violence (3 studies):
Recommendations: Several negative effects of mass quarantine were identified; the only positive effect identified was altruism. Since mass quarantine can lead to several negative social consequences and may worsen existing inequalities, a focus on reducing social inequalities should be a priority for countries to build resilience and preparedness for future outbreaks. Authorities should implement specific interventions and equity‐based strategies to mitigate socioeconomic implications and mental health impacts of mass quarantine, and clearly tackle social inequalities during mass quarantine and in preparation for lifting such restrictions. Negative social consequences of mass quarantine, such as poor psychological outcomes, can exacerbate existing inequalities or determinants of health. Negative effects may disproportionately affect people experiencing financial hardship, those who are unemployed, or who cannot work from home. Limited access to overloaded healthcare services may also worsen psychological effects, inhibit consultations for those with existing conditions, and substance abuse may be left untreated. A sense of altruism was a positive consequence of mass quarantine; authorities may promote altruism by developing culturally competent, context‐specific strategies; promote use of digital technologies to increase healthcare capacity and harness technology to better enable social connectedness amongst populations. Negative impacts of mass quarantine included reinforcing stigma against minority populations, increased misinformation, and lowered trust in authorities. Such effects have exaggerated existing communication inequalities, which may be negatively associated with outbreak preparedness; these have been compounded by poor information governance across authorities (e.g. no rationale for decision‐making, inconsistent information and instructions and lack of coordination of mass quarantine). Authorities can improve communication by designing equity‐based communication messages (such as information tailored to individual needs based on age, educational level, language), based on accurate data and measures adjusted for risk of disease, consulting community representatives (e.g. those from social minority groups) in developing supplementary measures to lockdowns, and learn from examples of successful misinformation curbing. Community engagement, transparency and tailored strategies to address misinformation are key elements of communication inequality mitigation. Responses should also aim to mitigate existing social disparities (e.g. those for women or ethnic minorities) and respond to needs of vulnerable populations identified directly. Negative effects of mass quarantine may more heavily burden countries unprepared for public health emergencies. For instance, food insecurity may lead to panic buying in high‐income countries but to population‐level famine in low‐income countries; similarly, remote learning may be feasible in urban centres but not for those living in poverty, or in remote areas with poor digital infrastructure. Interventions are therefore needed to address existing disparities as well as those worsened by mass quarantine. |
Communication purpose: Findings may inform authorities’ planning and implementation of mass quarantine, including communication to inform populations of measures and to support them in practical terms. Related to review questions: Mass quarantine has several negative effects on society and may worsen existing inequalities. Communication strategies to engage with and inform populations about the measures therefore needs to explicitly address such communication inequalities. Communication between authorities and the population should provide clear, accurate and consistent information; actionable messages; and these must be tailored to different groups within the population (e.g. those of lower health literacy or minority racial groups). Introducing mass quarantine needs to recognise the unintended negative effects of such measures upon the population, and that vulnerable groups may be disproportionately affected. This may require tailored or intensified support (e.g. financial support, food, family violence support and other necessities) to be provided to some or all of the population under quarantine. Strengthening of health systems, and associated support (e.g. access to psychological support) is also indicated. |
ECDC 2020b# Citation type: GL Guidance on infection prevention and control of COVID-19 in migrant and refugee reception and detention centres in the EU/EEA and the UK (europa.eu) June 2020 Public health measure: Isolation, and also maps onto quarantine, and crowd avoidance Mapping to Uptake, acceptability, adherence, feasibility Mapping to: Theme 1: features of public communication: content, timing and duration, and delivery Theme 2: recipients of public communication: audience, setting and equity Theme 4: community engagement to support communication Theme 5: public trust and perceptions |
Overview and aim: To describe measures for prevention and control of COVID‐19 for refugees and migrants (including asylum seekers and others) living in reception and detention centres Type of study and data: GL (technical report) Included disease(s): COVID‐19 Timing: None specific Countries included: EU/EAA and UK Higher‐income countries Intervention or phenomenon of interest: Communication to support preventive health measures in refugee/migrant detention centres Quality assessment: AGREE II: scope and purpose 86.1%; rigour of development 12.50%; editorial independence 25% Funding source: Not reported |
Reported on:
Risk communication and community engagement:
Actionable messaging:
Addressing rumours and fears:
Addressing stigma and discrimination:
Recommendations: Preventive measures like physical distancing may be difficult to implement in refugee/migrant reception or detention centres, due to problems such as overcrowding and lack of facilities. Despite this, physical distancing and other measures should be promoted by providing clear, accurate, understandable information to residents, focusing on actionable messages about prevention and healthcare. Information must be tailored appropriately to language, health literacy and culture, and should aim to address misconceptions or rumours. |
Communication purpose: Findings can inform strategies for developing appropriately tailored (to health literacy, cultural background) information to communicate with refugee and migrant populations to reduce risk of COVID‐19 transmission. Related to review questions: Despite the difficulties inherent in implementing preventing measures in migrant/refugee detention centres, the aim should be to enact physical distancing and others measures as well as possible given practical limitations (e.g. overcrowding). Communication is key in such situations, to convey risk of disease and actionable messages about prevention. Information needs to be trusted and tailored appropriately to the audience, which may be assisted by community engagement. Information should address misinformation that might otherwise create a barrier to behavioural changes to protect health. |
ECDC 2020a# [Guidance on the provision of support for medically and socially vulnerable populations in EU/EEA countries and the United Kingdom during the COVID‐19 pandemic, 3 July 2020. Stockholm: ECDC; 2020] Citation type: GL Public health measure: Isolation, and also maps onto quarantine, general PD Mapping to: Acceptability, adherence, feasibility Mapping to: Theme 1: features of public communication: content, timing and duration, and delivery Theme 2: recipients of public communication: audience, setting and equity Theme 3: support for individual and population behavioural changes Theme 4: community engagement to support communication Theme 5: public trust and perceptions |
Overview and aim: To provide guidance (for civil society, NGOs and national, regional authorities) on major challenges, successes and lessons learned from organisations providing support to medically and socially vulnerable people during the COVID‐19 pandemic Type of study and data: GL: guidance presented as technical report based on triangulation of findings from rapid review and across‐country survey (EU/EEA/UK). Authors noted this is exploratory, rather than exhaustive. Included disease(s): COVID‐19 Timing: Survey completed June 2020; in response to stay‐at‐home measures from March‐May 2020 but in anticipation of further restrictive measures as pandemic progresses Countries included: EU/EEA/UK high income Intervention or phenomenon of interest: Challenges for people living in vulnerable situations during pandemic (medically vulnerable or socially vulnerable) and ways to address these Quality assessment: AGREE II: scope and purpose 75.0%; stakeholder involvement 55.56%; rigour of development 13.5%; clarity of presentation 66.67%; applicability 6.25%; editorial independence 0% Funding source: Not reported |
Reported on: [data extraction focuses on findings of the joint review + survey data, not on the separate results of each] The COVID‐19 pandemic has created huge challenges in terms of morbidity and mortality, but also in terms of social and economic impacts. Within populations, some people are much more vulnerable to the effects of COVID‐19 than others. This may be a medical vulnerability (i.e. people at higher risk of death or severe disease e.g. older people, people with underlying medical conditions), a social vulnerability (i.e. vulnerable due to the public health measures put in place to control COVID‐19 e.g. people with long‐term physical, mental, intellectual or sensory impairments, homeless people, ethnic minorities, irregular migrants), or overlapping or accumulating categories of vulnerability which create particularly challenging circumstances. There is need for policy responses that recognise the particular challenges faced by each type of vulnerable population, and that allow a more comprehensive approach to address shared challenges and needs across groups. Some of the challenges identified for people who are medically/socially vulnerable have included:
Information jointly analysed from a rapid review and across‐country survey indicated a range of strategic good practices to better support vulnerable groups during the pandemic, particularly if there are surges of cases requiring reintroduction of restrictive measures (i.e. movement restrictions and stay‐at‐home orders) and their accompanying challenges. Those practices most closely related to communication and physical distancing measures are summarised below. Clear communication between service providers and users: Standard risk communication principles should be used when communicating with service users, including:
Community engagement:
Use of online/digital technologies: Online technologies (e.g. video or telephone services, virtual peer support groups, group sites for sharing information and lessons), have been an essential way to provide support during the pandemic, and to assist with continuity of existing services. However, such services may not be appropriate in all cases, for instance:
In such cases, other means of reaching people are needed and must be accessible (e.g. by providing financial reimbursement for costs, mobile devices, training). Maintaining social connections: Efforts are needed to ensure that vulnerable people are not socially, as well as physically, isolated. These might include assistance with planning how to keep in touch with family/friends, counselling or psychosocial support, and online group activities. Other key good practices identified include the following:
Recommendations: Recognition of and attention to addressing the particular challenges of vulnerable groups during the pandemic is key. Principles of risk communication can inform communication strategies for such groups, and community engagement may critically inform responses developed to support vulnerable people within the population, as well as helping to build trust, sustainability and acceptability of responses. Digital technologies may assist in adapting some support services for vulnerable people; but care must be exercised as lack of easy access to such technologies may otherwise further marginalise people from vulnerable groups. Provision of material, including financial, support is crucial to ensure that routine services are maintained and extended for those experiencing disproportionate effects of the pandemic due to one or more vulnerabilities. |
Communication purpose: Findings can inform development of public health communication and information strategies to more effectively and appropriately reach vulnerable groups within the community. Related to review questions: Improving communication and support of vulnerable populations may improve uptake, acceptability and adherence to measures; and may mitigate some of the unintended consequences of PH measures in vulnerable groups within the community. |
Mao 2021# Citation type: SR (rapid) Public health measure: Isolation, and also maps onto quarantine, and general PD Mapping to: Adherence, feasibility Mapping to: Theme 3: support for individual and population behavioural changes Theme 4: community engagement to support communication |
Overview and aim: To identify models and features of volunteering in the UK during the COVID‐19 pandemic (volunteering defined as giving unpaid help as an individual or through a group, club or organisation, to people who are not a relative) Type of study and data: Rapid SR; qualitative and quantitative; N = 27 (13 reports, 3 briefings, 5 blog posts, 2 newspaper articles, 2 websites entries, 2 peer reviewed journal articles) Inclusion and exclusion criteria: Included: studies of community/volunteering groups, volunteers, community champions; UK only. Diverse research included: peer reviewed articles, reports, briefings, blog posts, newspaper articles, online media. English language only. Excluded: Non‐English language; commentary/review; not empirical or analytical Participant features and numbers, sampling details: Sample sizes varied enormously, depending in part on method e.g. 7 interviews plus 57 survey responses up to approximately 32,000 survey responses. Included disease(s): COVID‐19 Timing: Search for evidence January to October 2020. Results are discussed in terms of timing of lockdowns (early/later) and stage of pandemic. Authors note that the timing of the review (2020) represents a limitation in that findings are only relevant to the relatively early stages of the pandemic. Countries included: UK only; high‐income country Intervention or phenomenon of interest: Community volunteer activities and outcomes during the pandemic Quality assessment: AMSTAR 5/11: [1. No protocol/plan; 2. No mention of screening/data extraction details; 5. No excluded studies list; 8. Quality not integrated with findings; 10. No publication bias assessment; 11. no study COI reported]. Funding source: This work was supported by the UK Research and Innovation/Economic and Social Research Council (grant reference number ES/V005383/1). The funders had no role in study design, data collection and analysis, decision to publish, or preparation of the manuscript. |
Reported on: Several major topics identified through thematic analysis Volunteering activities: addressing needs:
Volunteering activities: adapting through digital tool use:
Volunteering models:
Volunteer profiles:
Successes, challenges, and determinants of effectiveness:
Relationships with authorities:
Recommendations: Diverse volunteering activities and organisations have been apparent during COVID‐19, reflecting existing community support groups adjusting their activities and scope of their activities and the emergence of new groups to meet needs within communities. Importantly, groups appear to have modified their activities following the first lockdown (earlier section of the research sampling window), with an overall shift from immediate demands towards more structural needs. Social connections, local knowledge and social trust were key factors associated with volunteering. Volunteers also tended to be of working age, women, highly educated and middle class. To date community engagement with volunteer groups has been limited but public engagement and community support have been critical during the COVID‐19 pandemic and are likely to have a key role in future public emergencies. |
Communication purpose: Findings may be useful for informing strategies to communicate with communities about isolation and lockdown measures, as well as identifying a range of needs of communities during enactment of such measures. Related to review questions: Volunteer groups and activities are diverse and have a critical role in supporting people during the pandemic, e.g. in relation to adherence to isolation (lockdown). Early activities focused on delivery of essential supplies; later, on overcoming social isolation apparent in many in the community; and after the first lockdown, activities shifted to address wider pandemic impacts and unmet needs of community members. Provision of such supports may assist people to adhere to isolation measures. Volunteer activities and organisations have needed to remain flexible in order to respond the changing circumstances with the prolonged pandemic emergency, for instance moving services to digital delivery or adapting delivery and activities undertaken, while attempting to address issues such as digital exclusion through other communication methods (e.g. mass leaflet drops). New partnerships and knowledge formed through mutual aid groups responding in early stages of the pandemic may be valuable as the pandemic continues but also in future emergencies. Volunteering structures which incorporate leadership together with information sharing and shared decision‐making may be best placed to respond to the wide range of needs that are encountered. Co‐ordination and communication with authorities by a community‐led infrastructure may help to ensure that the needs of those people within the community not met by standard government services are identified and met. People who volunteer tend to show social support and engagement, strong trust in people to follow guidelines and trust in government, as well as social connection. A promising model includes community champion schemes, where volunteers are provided with the most recent information (including infographics in community languages) on COVID‐19 to share with their community, as well as providing feedback from the community to authorities about which communications are effective and which are not. Authorities consulting with community groups may provide helpful information on current or future priorities and needs within the community, for example, that clear advice is available to communities as they move out of restrictions (lockdown), that inequalities within communities are addressed, and that support for children to return to school or for businesses to reopen is provided. |
Mobasseri 2020# Citation type: SR (scoping) Public health measure: Isolation, and also maps onto general PD Mapping to: Adherence Mapping to: Theme 2: recipients of public communication: audience, setting and equity Theme 3: support for individual and population behavioural changes |
Overview and aim: To review the evidence on issues faced by older people during the COVID‐19 pandemic Type of study and data: Scoping review; 210 included papers; quantitative and qualitative (included guidelines, reviews, epidemiological research, editorials, brief reports etc.) Inclusion and exclusion criteria: Included: all publications on COVID‐19 and older adults (research, reports, guidelines, news articles, and scientific material); English language Excluded: non‐English language papers Participant features and numbers, sampling details: ‘Older adults’; no further details Included disease(s): COVID‐19 Timing: Searches for literature January to end July 2020 Countries included: China, France, US, UK, Italy, Germany, Spain, Australia, Ireland, other. All upper middle‐ or high‐income countries Intervention or phenomenon of interest: Issues for older people living through a pandemic Quality assessment: AMSTAR 4/11: [1. No protocol/plan; 5. No real features of included studies; 6. Excluded studies listed; 7,8 quality not assessed or integrated into findings; 10. Publication bias not assessed; 11. No COI for included studies] Funding source: This study is the part of research project funded by Tabriz University of Medical Sciences (Grant No: 65164) and approved by regional research ethics committee of Tabriz University of Medical Sciences; Approval ID: IR.TBZMED.REC.1398.1278. |
Reported on: Six themes identified; those relevant to communication are summarised below. Support and information sources:
E‐Health services:
Essential supply access:
Physical and mental consequences of self‐isolation:
Neglect and age discrimination:
Recommendations: Older people have a range of needs, issues and challenges associated with living through the pandemic. These may require tailored services, information and support to improve and maintain people’s well‐being. The media has a key role in educating the public and preventing age discrimination. Telemedicine may be an effective way to deliver healthcare, but older people need support and information to be able to access health or social care online. Younger people can support older people in isolation through grocery delivery, helping with everyday tasks and supporting their use of technology, so they can remain socially connected. |
Communication purpose: Findings indicate some specific issues for older adults, particularly related to remotely accessing health or other services, and so may inform strategies to improve support to these people. Related to review questions: A range of services, including access to food and essential supplies, is needed to support older adults during isolation required to protect their health during the pandemic. Although remotely delivered health and social care may assist older people to participate in these activities more readily, many do not have ready access to technology or know how to use it. Information and guidance are therefore needed to enable older people to make use of such services. |
Regmi 2021# Citation type: SR Public health measure: Isolation, and also maps onto quarantine, crowd avoidance and general PD Mapping to: [major outcome categories] Acceptability, adherence Mapping to: Theme 1: features of public communication: content, timing and duration, and delivery Theme 3: support for individual and population behavioural changes Theme 5: public trust and perceptions |
Overview and aim: Identification of factors associated with implementation of non‐pharmaceutical (NPI) measures (physical distancing, isolation, quarantine) for reducing COVID‐19 transmission Type of study and data: SR; qualitative and quantitative primary research. N = 33 studies included (cross‐sectional (26), 4 qualitative, 2 cohort, 1 case‐controlled study) Inclusion and exclusion criteria: Included: Participants of any age, gender or ethnicity, and healthcare workers; NPIs (physical distancing, isolation, quarantine); all effectiveness studies (RCTs, non‐RCTs, observational) including pre‐prints Excluded: publications lacking primary data Participant features and numbers, sampling details: 116,897 participants in total Explicitly considered older people (over 70 years) and/or those with comorbidity; as well as those ethnic populations in lower SES groups Included disease(s): COVID‐19 only Timing: Searches December 2019 to March 2021. No further consideration of pandemic timing Countries included: 17 countries including the UK (5), China (8 including Hong Kong), USA (4), Germany (3), Italy (3), the Netherlands (2), Paraguay, India, Saudi Arabia, Ireland, Tanzania, Singapore, UAE, Nepal, Sudan, Georgia, Bangladesh Studies across all income brackets (low to high income) but approximately 80% high‐income countries Intervention or phenomenon of interest: Implementation of specific NPIs, and factors (enablers and barriers) associated with these Quality assessment: AMSTAR 7/11: [5. No excluded studies listed/provided; 8. Quality assessed and reported but not linked to results specifically; 10. Publication bias not assessed; 11. No COI for included studies reported] Funding source: This research received no external funding. |
Reported on: Identified seven themes on enablers (3 themes) and barriers (4) to NPI measures No enabling themes related to communication specifically; rather focused on effective NPI elements (e.g. behavioural change following NPI measures) Of barriers identified, two relate to communication:
Further factors affecting adherence (equity implications) (13 studies):
Recommendations: Research is needed to better understand and promote adoption of specific NPIs within different countries and contexts, and to further consider the many factors that might influence this including sociopolitical, socioeconomic and cultural factors. Improving factual communication about pandemic risks, and understanding the needs and behaviours of individuals and specific populations are important.
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Communication purpose: Factors (enablers and barriers) may be useful for developing targeted messages and information to target disadvantaged groups, and to consider tailored support for those less likely, or less able, to follow NPI measures. Related to review questions: Clear, reliable information may help to dispel distrust of public health authorities and the media, and to support adoption of behaviours needed to enact NPI measures. Provision of tailored support for those at socioeconomic or other disadvantage may also help people to adopt and adhere to measures. |
Seale 2020# Citation type: SR (rapid; not truly systematic) Public health measure: Isolation, and also maps onto quarantine, school measures, and work measures Mapping to: Uptake, acceptability, adherence Mapping to: Theme 3: support for individual and population behavioural changes Theme 6: school measures |
Overview and aim: To identify key determinants of community engagement with individual protective behaviours and non‐pharmaceutical measures for COVID‐19, and their impacts on individuals, and to identify behaviour change interventions to promote and support community participation in required measures Type of study and data: Rapid SR; qualitative and quantitative studies; 53 included Inclusion and exclusion criteria: Included: Community settings (general population, non‐healthcare); English language; published, peer‐reviewed research; COVID‐19, SARS, MERS, H1N1, influenza A, hypothetical pandemics; personal protective and environmental measures (data not extracted) and NPI measures (isolation and quarantine, school and workplace measures, crowd avoidance) Participant features and numbers, sampling details: Not reported across included studies; specific examples cited related to described results Included disease(s): COVID‐19, SARS, MERS, H1N1, influenza A, hypothetical pandemics Timing: Searches January to March 2020 (early in pandemic). No specific time‐related factors highlighted. COVID‐19 studies published as of July 2020 were included. Countries included: Not clear for study set as a whole; NPI measure studies mentioned Australia (Aboriginal communities), Canada, New Zealand, Japan, The Netherlands, USA, Taiwan, Liberia. All high income except Taiwan (upper middle‐income) and Liberia (low‐income) Intervention or phenomenon of interest: Community engagement with NPI measures, and effects upon behaviours such as adherence to measures Quality assessment: 3/11 [1. No protocol; 4. Only published literature considered; 5.6 no list or complete characteristics of included studies; 7. No quality assessment or 8. Use in formulating results; 10. Publication bias not assessed; 11. COI for included studies missing] Funding source: There was no funding associated with this study. |
Reported on: [N.B. results related to personal protective measures not extracted – outside review scope] Isolation and quarantine:
Recommendations: NPI measures need to be introduced with practical supports (e.g. financial support, communication systems for contact while in isolation/quarantine). Information to support the measures needs to consider health literacy levels; be written in clear lay language including acknowledgement of the difficulties of adhering as well as information on the impact of measures and how to address or reduce negative impacts. School measures:
Communication themes:
Recommendations: A key focus needs to be community participation and co‐design of communication messages, materials and delivery of these (outreach) to support community behaviour change (adherence). Clear, consistent information about measures, including rationale for their use and practical ‘how to’ information (what can and cannot be done; who, what, when and where), as well as emphasising benefits of adherence, is critical as NPIs are introduced and implemented. Reciprocal support (social, healthcare, financial supports) is needed alongside communications to promote adherence. Communications need to be tailored to the community, including to lower health literacy levels, and/or to those less likely to adhere to measures. Involving community leaders in communicating key messages may help to build trust and move the community towards action. |
Communication purpose: Findings may inform development of communication messages for communities and individuals who are being asked to adhere to NPI measures such as isolation, quarantine and school closures. They may also inform development of tailored communication messages to particular groups within communities, such as those less likely to adhere to measures, or those with lower health literacy levels. Related to review questions: Clear, consistent communication and information about NPIs are needed to support people’s adherence to the required measures. NPI strategies should be proportional to the risk, and communications accompanied by reciprocal support (e.g. social and financial supports) for those adhering to the measures. A clear rationale for the measures needs to be widely communicated so that people accurately understand the risks, and should be accompanied by clear, actionable and consistent information about what people need to do to protect their health. Involving communities in developing and delivering messages to support the required behaviour changes may build trust and improve adherence. Communication and information provision should be tailored to local communities and groups within communities, such as those who are less likely to adhere, and use a range of media (e.g. social media, posters) to optimise reach. |
WHO 2020c# At: COVID-19 Global Risk Communication and Community Engagement Strategy – interim guidance (who.int) Interim guidance December 2020 Citation type: GL Public health measure: Isolation, and also maps onto crowd avoidance, and general PD Mapping to: Uptake, acceptability, adherence Mapping to: Theme 1: features of public communication: content, timing and duration, and delivery Theme 2: recipients of public communication: audience, setting and equity Theme 4: community engagement to support communication Theme 5: public trust and perceptions |
Overview and aim: To describe components of revised risk communication and community engagement framework and guidance in the context of the ongoing COVID‐19 pandemic Type of study and data: GL: based on series of stakeholder consultations and underpinned by meta‐analysis of 9 databases Included disease(s): COVID‐19 Timing: Nonspecific Countries included: WHO; international Intervention or phenomenon of interest: Risk communication and community engagement elements as key to pandemic PH responses Quality assessment: AGREE II: scope and purpose 52.8%; stakeholder involvement 44.44%; rigour of development 24.0%; clarity of presentation 58.33%; applicability 29.17%; editorial independence 33.3% Funding source: The RCCE Collective Service is a collaborative partnership between RCCE practitioners, convened by IFRC, WHO and UNICEF, with support from the Global Outbreak Alert and Response Network (GOARN), and key stakeholders from the public health and humanitarian sectors |
Reported on: Extracted data focuses on RCCE strategy components and purposes related most closely to PD measures for COVID‐19 prevention and control. Revised RCCE strategy reflects shift from directive, one‐way communication to community engagement and participatory approaches that have been successful in control and elimination of past disease outbreaks. The overall goal is to promote person‐centred, community‐led approaches in order to increase trust and social cohesion, and to decrease negative impacts of COVID‐19. Generally, data show that people know about COVID‐19 and the preventive measures needed to protect themselves, but risk perceptions are falling and complacency growing alongside increasing pandemic fatigue and uncertainty and falling confidence in ability to control the pandemic. Uptake of protective behaviours and adherence to measures will continue to be critical to controlling COVID‐19 even with effective vaccines and treatment; therefore strengthened RCCE will be critical to improve knowledge, acceptance and uptake of measures. Community engagement is key to understanding local contexts and ensuring an informed, appropriate (person‐centred) response, without which misinformation, confusion and mistrust can undermine public health efforts. Pandemic fatigue is growing and is likely to lead to fewer people being motivated to follow recommended preventive behaviours, and can be influenced by several factors including: lowered disease risk perceptions, increased socioeconomic and psychological impacts of the pandemic and restrictions, stress of uncertainty, becoming used to living in a pandemic situation and decreased trust in authorities. Importance of engaging stakeholders to design and implement communication strategies is emphasised, alongside mechanisms for feedback from stakeholders (which underpins effective two‐way communication and engagement). Meta‐analysis of multiple datasets identified the following related to communication and physical distancing measures:
Objectives of RCCE include:
RCCE efforts need to prioritise the most medically or socially vulnerable, with many different groups identified, including:
Major themes anticipated in immediate‐to‐medium term future (with relevance to communication for physical distancing measures:
Recommendations: Global trends in knowledge, perceptions, fatigue and related factors (e.g. economic impacts) indicate that effects of the pandemic are many and complex and make effective communication to increase PHSMs uptake challenging. RCCE and community engagement are key to promoting PHSMs and to addressing problems evident across communities and populations worldwide. At its heart, this should engage communities in two‐way dialogue to support locally appropriate processes, interventions and mechanisms to support and sustain implementation of required PHSMs. This should include deliberate consideration and engagement with those who are vulnerable (of which there are many) and work to ensure that engagement is representative of local communities. Co‐ordinated efforts to tackle misinformation will be critical, as this can lead to poor adherence to public health advice (as well as increase stigma and adversely affect health), which limits the effectiveness of the measures in countries’ pandemic responses. Pandemic fatigue will increase with the continuation of the pandemic, and better understanding is needed of the effects of this, e.g. people’s efforts to follow preventive measures may fall, their efforts to stay informed may also fall. Identifying and creating ways to engage and motivate people by partnering with local groups and leaders may help to improve motivation and therefore adherence to measures. |
Communication purpose: Findings may inform effective communication and engagement strategies and processes to address both existing and emerging issues (e.g. pandemic fatigue, economic and social pressures) experienced by people across the world that can impact on uptake and adherence to PHSMs to prevent and control COVID‐19. Related to review questions: Many factors affect adherence to physical distancing measures. Some are structural or practical; others reflect sociocultural factors within local communities and populations. Community engagement and clear communication and information may assist with addressing some of the identified barriers to adherence to measures. |
Primary studies | |||
Burnet 2020a# (primary) Mapping to: Adherence, also to acceptability Also relevant to public health measures 3 (quarantine) and 6 (crowd avoidance) |
Overview and aim: Exploration of Australians’ experiences of self‐isolation/quarantine and barriers and enablers to successful self‐isolation/quarantine Inclusion and exclusion criteria: Included: Adults (20 to 73 years), self‐isolating (or have done so) in Australia after being instructed to by a health or government authority Types of study and data: Primary qualitative study Countries included:Australia Quality assessment: 6/10 CASP score (recruitment strategy not reported; no referral to researcher/participant relationship; ethics approval not reported; no primary quotations used, analysis method not stated, coding framework not included) |
Reported on:
Communication:
Service provision/support:
Recommendations: Enhance immediate and ongoing communications to promote better knowledge about required self‐isolation/quarantine measures, including information to make the distinction between these measures and physical distancing measures clear. Create and disseminate consistent central information using lay language and incorporating practical information about initiation of measures, compliance, and services available to support the measures (including mental health services). Develop better ongoing support to enable people to be as compliant in home‐based and community‐based quarantine as possible, while reducing long‐term physical and mental health effects. This includes easily accessed food, medication, mental health services and financial support. This will be particularly important for those who are in home‐based quarantine without all the immediate government supports. Communicate the availability of these support services widely. Communicate about home and community‐based quarantine in a supportive, ‘no blame’ manner. |
Communication purpose: This may inform communication with individuals who have been asked to self‐isolate or are in quarantine to adhere to health or government authority requirements. These findings may also inform communication with communities about preparing for, or complying with, isolation or quarantine. Related to review questions: Findings show that individuals’ perceptions and experiences of self‐isolation and quarantine are affected by their access to clear information. Lack of information, contradictory/confusing information or difficult‐to‐find information about what people can and cannot do while in isolation/quarantine was related to non‐adherence. Access to basic services for those in isolation/quarantine must be assured, and information about these services communicated widely, including about mental health services and financial support, and how to access these services. |
Burnet 2020# (primary) Mapping to: Adherence (primary) but may also map to acceptability Also relevant to public health measures 3 (quarantine) and 6 (crowd avoidance) |
Outcomes and aim: Exploration of Australians’ experiences of self‐isolation/quarantine and barriers and enablers to successful self‐isolation/quarantine Intervention or phenomenon of interest: Adults (18 to 73 years), self‐isolating (or have done so) in Australia after being instructed to by a health or government authority Types of study and data: Primary qualitative study Countries included: Australia Quality assessment: 6/10 CASP score (recruitment strategy not reported; no referral to researcher/participant relationship; ethics approval not reported; some primary quotations used but analysis method not stated, coding framework not included) |
Reported on:
Findings reported here focus on social distancing measures and communication. Communication and information access: Fear and a lack of clear advice is driving symptomatic (COVID‐19) people to travel back to Australia without reporting symptoms, as they do not trust they will be supported to return home, and they do not understand Australian government policy.
Service provision:
Recommendations: Key recommendations to improve compliance with quarantine and reduce negative population‐wide health effects include:
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Communication purpose: This may inform communication with individuals who have been asked to self‐isolate or are in quarantine to adhere to health or government authority requirements and also clarify transmission risks once quarantine is complete. These findings may also inform communication with communities about preparing for, or complying with, isolation or quarantine and also transmission risks once recovered from COVID to reduce stigma. Related to review questions: Better communication and information about home‐based quarantine, including practical information, are needed to support people’s adherence to required measures. Access to support services for those in self‐isolation/quarantine must be assured, and information about these services communicated clearly, including mental health services, maternal and child checks and financial support, and how to access these services. Community‐level plain language information must be communicated about transmission risks in those transitioning from quarantine to physical distancing and aiming to reduce stigma so that people can safely transition out of quarantine. People with COVID experience stigma due to fear of community transmission and which may potentially negatively impact testing and contact tracing, so threatening the effectiveness of public health measures. |
Farooq 2020# (primary) Mapping to: Uptake Also relevant to general PD measures, particularly crowd avoidance |
Outcomes and aims: Investigates the impact of cyberchondria (continuous impulses to go online and read about concerning health topic) and information overload on voluntary self‐isolation intention Intervention or phenomenon of interest: Study develops and tests a model based on protection‐motivation theory to identify whether intermediate constructs (related to threat appraisal and coping appraisal) are impacted by cyberchondria or information overload and then influence self‐isolation intention. Inclusion and exclusion criteria: Included: Students, faculty, and employees of a university Type of study and data: Questionnaire‐based survey; 225 respondents; (March 19, 2020) using online survey tool Webropol. Descriptive statistics for all survey measures Countries included: Finland Quality assessment: Response rate: + representativeness: + COI: authors declared no COI exists; participants were geographically (Finland) and socially limited (students/staff of a university); pre‐print paper (not peer‐reviewed) |
Reported on:
Recommendations: Generally, cyberchondria and information overload are regarded as negative consequences of online information, however, during the COVID‐19 pandemic, they may indirectly contribute to self‐isolation intention. Sourcing information primarily from social media increases both cyberchondria and information overload. Recommended personalising communication by providing: 1) reassuring/hopeful messages targeting individuals experiencing cyberchondria; 2) communication aiming to increase perceived severity of the situation targeting those with no intention to self‐isolate; 3) clearly structured communication using reliable health information targeting those experiencing information overload. |
Communication purpose: Findings may be useful for enabling communication; facilitating decision‐making and supporting individuals’ behaviour change in relation to uptake of physical distancing behaviours (intention to adopt self‐isolation). Related to review questions: Findings link information provision (cyberchondria and information overload) to perceived threat and appraisal of coping and through them, influences intention to self‐isolate. Findings suggest that clear, tailored communication targeting particular groups may help to counteract some of these effects, particularly associated with social media as the primary information source, and so positively influence intention to self‐isolate. |
Qazi 2020# (primary) Mapping to: Uptake Focused on general PD measures particularly crowd avoidance |
Outcomes and aim: Effects of formal and informal information sources on situational awareness (perceived public understanding) to predict adoption of PD measures during COVID‐19 Inclusion and exclusion criteria: Included: Adults 18 years and older Type of study and data: Questionnaire‐based survey; 210 responses. Formal information sources (e.g. newspapers, press releases, educational messages) and informal sources (social media, peer and family views) Countries included: Unclear, likely Pakistan Included disease(s): Specific to COVID‐19 but based on same theory used for SARS outbreak analysis Quality assessment: Response rate: + representativeness: + authors declare no COI; people with lower computer skills/access underrepresented; paper published (peer reviewed) |
Reported on:
Recommendations: Formal and informal information sources influence public situational awareness. This in turn increases adoption of preventive behaviours (physical distancing). Formal sources are associated with greater compliance with physical distancing measures; informal sources may not be influential until preventive behaviours have been adopted by the community. |
Communication purpose: This may guide communication with communities to prevent transmission through adoption of public health measures (physical distancing). Related to review questions: Findings link information provision through informal and formal routes to changes in perceived understanding, and with adoption of physical distancing measures. |