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. 2023 Oct 10;22:153. doi: 10.1186/s12904-023-01266-6

Table 1.

Patient characteristics, care and dying situation (N = 142)

n %
Age, M (SD); range 71.3 (11.2); 29–94
Gender Male 81 57.0
Female 61 43.0
Disease Gastrointestinal cancer 33 23.2
Cancer of the respiratory tract 30 21.2
Urogenital cancer a 43 30.3
Other malignant diseases 23 16.2
Non-malignant diseases 13 9.2
Family status Single 23 16.3
Married, life partnership 79 56.0
Divorced, widowed 39 27.7
Children Yes 107 75.9
No 34 24.1
Advance directive at initiation of SPC Yes 98 69.0
No 44 31.0
Days between initiation of SPC and death, M (SD); Range 53.7 (60.3); 0-279
Experience of at least one transfer between in- and outpatient SPC settings Yes 45 31.7
No 97 68.3
Number of transfers between in- and outpatient SPC settings, M (SD); Range 0.6 (1.2); 0–8
Location at death At home with outpatient SPC 73 51.4
Nursing home with outpatient SPC 12 8.5
Inpatient hospice with outpatient SPC 6 4.2
Palliative care ward 51 35.9
SPC setting at the time of death Outpatient 92 64.8
Inpatient 50 35.2
Performance status (ECOG) in the last 3 days of life ECOG ≤ 2 8 5.7
ECOG 3 21 14.9
ECOG 4 112 79.4
Vigilance status in the last 3 days of life Alert 15 10.9
Can be awakened 37 27.0
Comatose 79 57.7
Unknown 6 4.4
Somebody was with the patient in the moment of death Yes 97 70.8
No 30 21.9
Unknown 10 7.3

a Including all cancers of the urogenital system (e.g. prostate cancer, bladder cancer etc.) and breast cancer

Abbreviations: SPC, specialist palliative care; ECOG, performance status according to the Eastern Cooperative Oncology Group