Table 2.
Psychometric properties of the translated and culturally adapted SCNS-P&C45-S questionnaire
| Item* | Missing data n (%) | Item frequency distribution % | Item descriptive statistics | ||||||
|---|---|---|---|---|---|---|---|---|---|
| Not relevant | Satisfied | Low need | Moderate Need | High need | Mean | SD | Skewness | ||
| #1 Accessing information relevant to you as partner | 0 | 22.7 | 36.4 | 9.1 | 20.5 | 11.4 | 1.61 | 1.35 | 0.460 |
| #2 Accessing information about prognosis or likely outcome | 0 | 9.1 | 45.5 | 9.1 | 13.6 | 22.7 | 1.95 | 1.38 | 0.419 |
| #3 Accessing information about support for partners | 0 | 27.3 | 31.8 | 11.4 | 15.9 | 11.4 | 1.51 | 1.37 | 0.558 |
| #4 Accessing information about alternative therapies | 0 | 18.2 | 43.2 | 9.1 | 15.9 | 13.6 | 1.64 | 1.33 | 0.591 |
| #5 Accessing information on the person with cancer’s physical needs | 0 | 22.7 | 36.4 | 9.1 | 22.7 | 9.1 | 1.59 | 1.31 | 0.433 |
| #6 Accessing information about benefits and side-effects of treatments | 0 | 13.6 | 40.9 | 15.9 | 15.9 | 13.6 | 1.75 | 1.28 | 0.494 |
| #7 Obtaining the best medical care for the person diagnosed with cancer | 0 | 18.2 | 45.5 | 11.4 | 0 | 25 | 1.68 | 1.46 | 0.728 |
| #8 Accessing health care services | 0 | 22.7 | 52.3 | 4.5 | 2.3 | 18.2 | 1.41 | 1.37 | 1.082 |
| #9 Being involved in the person diagnosed with cancer’s care | 0 | 31.8 | 38.6 | 9.1 | 9.1 | 11.4 | 1.30 | 1.32 | 0.941 |
| #10 Having opportunities to discuss your concerns with the doctors | 0 | 20.5 | 45.5 | 18.2 | 2.3 | 13.6 | 1.43 | 1.25 | 0.993 |
| #11 Feeling confident that the doctors are coordinating care | 0 | 18.2 | 47.7 | 6.8 | 6.8 | 18.2 | 1.58 | 1.38 | 0.797 |
| #12 Ensuring an ongoing case manager to coordinate services for the person diangosed with cancer | 0 | 18.2 | 50 | 9.1 | 4.5 | 18.2 | 1.55 | 1.36 | 0.899 |
| #13 Making sure complaints are properly addressed | 0 | 52.3 | 22.7 | 6.8 | 6.8 | 11.4 | 1.02 | 1.39 | 1.212 |
| #14 Reducing stress in the person diagnosed with cancer’s life | 0 | 22.7 | 29.5 | 22.7 | 13.6 | 11.4 | 1.61 | 1.30 | 0.440 |
| #15 Looking after your own health | 1 (2.3%) | 29.5 | 34.1 | 15.9 | 4.5 | 15.9 | 1.43 | 1.39 | 0.804 |
| #16 Obtaining adequate pain control | 0 | 38.6 | 40.9 | 4.5 | 4.5 | 11.4 | 1.09 | 1.29 | 1.319 |
| #17 Addressing fears about physical or mental deterioration | 0 | 29.5 | 27.3 | 18.2 | 13.6 | 9.1 | 1.44 | 1.32 | 0.535 |
| #18 Accessing information about the potential fertility problems | 0 | 72.7 | 11.4 | 11.4 | 4.5 | 0 | 0.48 | 0.88 | 1.705 |
| #19 Caring for the person diagnosed with cancer on a practical level | 0 | 59.1 | 22.7 | 13.6 | 2.3 | 2.3 | 0.66 | 0.96 | 1.569 |
| #20 Finding accessible hospital parking | 0 | 50.0 | 29.5 | 9.1 | 4.5 | 6.8 | 0.89 | 1.19 | 1.457 |
| #21 Adapting to changes to the person diagnosed with cancer’s working life or activities | 0 | 36.4 | 29.5 | 18.2 | 11.4 | 4.5 | 1.18 | 1.19 | 0.769 |
| #22 The impact that caring for the person diangosed with cancer has had on your working life or activities | 0 | 47.7 | 18.2 | 20.5 | 9.1 | 4.5 | 1.05 | 1.22 | 0.878 |
| #23 Finding out about financial support | 1 (2.3%) | 47.7 | 18.2 | 11.4 | 13.6 | 6.8 | 1.12 | 1.35 | 0.834 |
| #24 Obtaining life and/or travel insurance for the person diagnosed with cancer | 1 (2.3%) | 56.8 | 13.6 | 18.2 | 2.3 | 6.8 | 0.86 | 1.23 | 1.262 |
| #25 Accessing legal services | 1 (2.3%) | 77.3 | 0 | 13.6 | 6.8 | 0 | 0.56 | 1.18 | 1.912 |
| #26 Communicating with the person diagnosed with cancer | 1 (4.6%) | 34.1 | 40.9 | 9.1 | 4.5 | 9.1 | 1.12 | 1.22 | 1.256 |
| #27 Communicating with the family | 0 | 34.1 | 43.2 | 6.8 | 2.3 | 13.6 | 1.18 | 1.32 | 1.250 |
| #28 Getting support from your own family | 0 | 38.6 | 43.2 | 11.4 | 2.3 | 2.3 | 0.84 | 0.90 | 1.273 |
| #29 Talking to other persons who have cared for someone diagnosed with cancer | 0 | 43.2 | 22.7 | 25 | 6.8 | 2.3 | 1.02 | 1.09 | 0.746 |
| #30 Managing the topic of cancer in social situations | 1 (2.3%) | 50 | 27.3 | 18.2 | 2.3 | 2.3 | 0.80 | 0.98 | 1.213 |
| #31 Managing concerns about recurrence | 0 | 29.5 | 18.2 | 18.2 | 20.5 | 13.6 | 1.70 | 1.44 | 0.205 |
| #32 The impact of cancer on your relationship | 0 | 34.1 | 34.1 | 25 | 4.5 | 2.3 | 1.07 | 1.0 | 0.742 |
| #33 Understanding the experience of the person diangosed with cancer | 0 | 20.5 | 38.6 | 20.5 | 6.8 | 13.6 | 1.55 | 1.28 | 0.723 |
| #34 Balancing your own needs with the needs of the person diagnosed with cancer | 1 (2.3%) | 34.1 | 34.1 | 15.9 | 9.1 | 4.5 | 1.14 | 1.15 | 0.857 |
| #35 Adjusting to physical changes in the person diagnosed with cancer | 0 | 47.7 | 34.1 | 15.9 | 0 | 2.3 | 0.75 | 0.89 | 1.349 |
| #36 Addressing problems with your sex life | 0 | 59.1 | 25 | 11.4 | 2.3 | 2.3 | 0.64 | 0.94 | 1.682 |
| #37 Getting own emotional support | 0 | 34.1 | 29.5 | 22.7 | 6.8 | 6.8 | 1.23 | 1.20 | 0.813 |
| #38 Getting emotional support for your own family | 0 | 50 | 22.7 | 20.5 | 0 | 6.8 | 0.91 | 1.16 | 1.315 |
| #39 Managing feelings about death and dying | 0 | 40.9 | 22.7 | 22.7 | 4.5 | 9.1 | 1.18 | 1.28 | 0.896 |
| #40 Managing others not acknowledging the impact of caring for a person diagnosed with cancer on your life | 0 | 40.9 | 27.3 | 27.3 | 0 | 4.5 | 1.00 | 1.06 | 0.992 |
| #41 Coping with recovery not turning out as expected | 1 (2.3%) | 38.6 | 9.1 | 15.9 | 22.7 | 11.4 | 1.58 | 1.5 | 0.263 |
| #42 Making decisions about your life | 0 | 38.6 | 31.8 | 18.2 | 4.5 | 6.8 | 1.09 | 1.18 | 1.070 |
| #43 Exploring your spiritual beliefs | 0 | 72.7 | 15.9 | 6.8 | 0 | 4.5 | 0.48 | 0.98 | 2.502 |
| #44 Finding meaning in the person diangosed with cancer’s illness | 1 (2.3%) | 54.5 | 11.4 | 20.5 | 2.3 | 6.8 | 0.90 | 1.25 | 1.163 |
| #45 Having opportunities to participate in decision making | 0 | 40.9 | 38.6 | 6.8 | 4.5 | 9.1 | 1.02 | 1.23 | 1.372 |
*Items are shortened. For full version see Girgis et al. [10]