Table 9.
Stroke pilot data collection journey—list of monitored variables and their method of collection.
| Variable | Description | Data Value Range |
Acquisition Method |
Used Devices |
|---|---|---|---|---|
| Domain I—Mobility, general motor or physical function | ||||
| Step count, periods of relative immobility/slowness of movement |
Continuously monitored step count and other features of general mobility in daily life |
step count: integer (0–15,000) periods of mobility: seconds (0–14,400) |
Continuous Monitoring - eHealth device |
Fitbit Smart Watch |
| Heart rate, SpO levels | Monitoring of daily heart rate and blood oxygen levels |
heart rate: integer (30–200) blood oxygen levels: percentage (0–100) |
Continuous Monitoring - eHealth device |
Fitbit Smart Watch |
| Physical Activity Amount | Exact time periods of inactive, light, medium or vigorous activity |
seconds (0–14,400) | Intense Monitoring every 6 months - eHealth devices |
Fitbit Smart Watch GENEActiv Bracelet |
| Rehabilitation Exercises | Detect execution of prescribed upper and lower limb physical rehabilitation exercises |
seconds (0–3600) duration of detected exercises |
Intense Monitoring every 6 months - eHealth devices |
Fitbit Smart Watch GENEActiv Bracelet NTNU Smart Belt Loadsol Insoles |
| 6 min walk test | Sub-maximal exercise test assessing walking endurance and aerobic capacity. Participants walk around an indoor perimeter for a total of six minutes. |
metrics from first row avg. cadence per 30 s: integer loading rate: N/s (speed of normal force applied to body) factor of imbalance: percentage (disproportion of load between feet) peak force: N (maximum force push while walking) |
Intense Monitoring every 6 months - eHealth devices |
Fitbit Smart Watch GENEActiv Bracelet NTNU Smart Belt Loadsol Insoles |
| ACTIVLIM questionnaire | Self-assessed questionnaire to examine both upper and lower limb muscle strength using daily living activities |
integer, questionnaire score: −11–+11 | Continuous Monitoring - PRO on smartphone (every month) |
Smartphone |
| Dizziness and Balance questionnaire |
Self-assessed questionnaire for the balance variable |
integer, questionnaire score | Continuous Monitoring - PRO on smartphone (every month) |
Smartphone |
| Self-assessed questionnaire for muscle tone |
Self-assessed questionnaire to quantify the muscle tone variable |
integer, questionnaire score | Continuous Monitoring - PRO on smartphone (every month) |
Smartphone |
| Domain II—Sleep disorders | ||||
| Pittsburgh Sleep Quality Index (PSQI) |
Self-administered questionnaire to assess sleep patterns |
integer, questionnaire score: 0–21 | Continuous Monitoring - PRO on smartphone (every month) |
Smartphone |
| General Sleep Patterns | Continuous monitoring of general sleep stage duration using the smart watch sensor |
total bed time: hours (0–12) light sleep: hours (0–12) deep sleep: hours (0–12) REM sleep: minutes (0–240) apnea: Boolean (true/false) snoring: minutes (0–240) |
Continuous Monitoring - eHealth devices |
Fitbit Smart Watch |
| Intense Sleep Monitoring | Sleep monitoring during pilot milestones using eHealth devices and a polysomnograph |
Previous row metrics + polysomnography analysis |
Intense Monitoring every 6 months - eHealth devices |
ENORA Sleep Mat Withings Sleep Mat Fitbit Smart Watch GENEActiv Bracelet |
| Domain III—Mental and cognitive ability | ||||
| Keystroke dynamics | Detailed timing of typing on smartphone |
Enum: classes of abnormal typing patterns |
Continuous Monitoring - eHealth devices |
Smartphone |
| Line Tracking Test | Self-administered test on tablet to assess various aspects of arm/hand movement |
Reaction time: ms Movement time: msec Internal time delays: msec |
Intense Monitoring every 6 months - eHealth devices |
Tablet |
| Virtual Supermarket Test | Self-administered test based on a 3D serious game to assess cognitive decline |
time to completion: ms (scores above 215,000 ms indicate possible cognitive impairment) |
Intense Monitoring every 6 months - eHealth devices |
Tablet |
| Domain IV—Emotional status | ||||
| Facial Expression Analysis | Estimate Mood using facial expression analysis enabled by MEAA (see Section 2.2.2) |
Enum: mood class and probability | Continuous Monitoring - eHealth device |
Smartphone |
| COAST | Self-assessed questionnaire to assess the speech variable |
integer: questionnaire score (20–100) | Continuous Monitoring - PRO on smartphone (every month) |
Smartphone |
| PHQ-9 | monitor the severity of depression and response to the treatment |
integer: questionnaire score (0–27) | Continuous Monitoring - PRO on smartphone (every month) |
Smartphone |
| Domain V—Quality of life and daily living | ||||
| MFIS | Assessment of the effects of fatigue in terms of physical, cognitive and psycho-social functioning |
integer: questionnaire score (0–84) | Continuous Monitoring - PRO on smartphone (every month) |
Smartphone |
| Food Habits Questionnaire (FH-Q) |
Self-report questionnaire measuring food intake habits about typical eating patterns over the past month |
integer: questionnaire score (0–18) | Continuous Monitoring - PRO on smartphone (every month) |
Smartphone |