Table A1.
List of relevant questions by health domain for the PD study.
Question | Intent | Possible Answers | Scheduling |
---|---|---|---|
Domain I—Mobility, general motor or physical function | |||
During the day today, regarding “off” periods, you have had: |
Intensity and impact of experience of off periods |
0, 1, 2, 3, or 4 0: None 1: very minor 2: Mild 3: Modest 4: Severe |
Continuous Monitoring: End of each day |
During the day today, regarding dyskinesias, you have had: |
Intensity and impact of experience of dyskinesias |
0, 1, 2, 3, or 4 0: None 1: very minor 2: Mild 3: Modest 4: Severe |
Continuous Monitoring: End of each day |
During the day today, regarding “off” periods, you have had: |
Intensity and impact of experience of off periods |
0, 1, 2, 3, or 4 0: None 1: very minor 2: Mild 3: Modest 4: Severe |
Continuous Monitoring: End of each day |
During the day today, regarding dyskinesias, you have had: |
Intensity and impact of experience of dyskinesias |
0, 1, 2, 3, or 4 0: None 1: very minor 2: Mild 3: Modest 4: Severe |
Continuous Monitoring: End of each day |
PD calendar: What description (A, B, C, or D) best describes your condition over the last half hour? |
Length of periods of motor complications |
A (bad motor condition), B (mediocre motor condition), C (good motor condition), D (bothersome dyskinesias) |
Intense Monitoring (1 week): Every 30 min, during waking hours |
Domain IV—Emotional status | |||
Which face/answer best describes your emotional state today? |
Gestalt feeling of the day | Happy, Sad, Normal, Content, Disappointed, Frustrated |
Continuous Monitoring: End of each day |
How would you rate these statements over the past week? - I feel irritable - I feel lonely or isolated - I feel calm - I feel that I am full of energy - I feel safe and protected - I am under pressure from other people - I enjoy myself - I feel terrified or afraid - I feel discouraged about the future - I feel worried about my physical condition |
Rating of feelings about things over a period of one week |
Scale of 0–4 | Continuous Monitoring: End of the week |
Domain V—Quality of life and daily living | |||
How would you rate these statements over the past week? - I spent pleasant time with friends. - I shared my status with friends through messages, social media or phone calls. - I spoke with persons in the neighborhood and got information on what is going on. - I spent pleasant and relaxing time with family through meals, chatting, etc. - I went to the gym or had a dedicated time for exercise at home or outdoors - I read for pleasure or knowledge - I performed enjoyable outdoor activities - I went out for shopping or other chores - I performed chores at home |
Pattern of social interactions linked to Quality-of-Life |
Scale of 0–4 | Continuous Monitoring: End of the week |