Table 2.
Details of tube feeding in the nine case reports
| Author, year [reference] | Study design | Number of patients that started tube feeding | Diagnosis | Age (mean) | Sex (M/F) | Indications tube feeding (n) | Disease duration (years) | Type of tube (n) | Weight loss | Complications |
| Allen &O’Leary, 2018 [28] | Case report | 1 | CongenitalDM1 | 21 | M | Dysphagia, (Risk for) aspiration | 21 | NR | NR | Respiratory failure |
| Bumm, Zenker &Bozzate, 2009 [29] | Case report | 1 | OPMD | 57 | M | Acute pneumonia, Progressive dysphagia Malnutrition | 0* | PEG | NR | NR |
| Christopher et al., 2001 [30] | Case report | 1 | OPMD | 83 | M | OPMD diagnosis | 0* | PEG | No | Respiratory failure, therefore intubated |
| Fuchs, Hoedemaekers &der Hoeven, 2009 [31] | Case report | 1 | Adult onset DM1 | 33 | M | Poor gastric retention, Weight loss | 0 | Gastric-duodenal tube | Yes | Respiratory failure |
| Hebbar, Webberly, Lunt &Robinson, 2007 [32] | Case report | 1 | OPMD | 76 | M | Progressive dysphagia, impossibility to perform a myotomy | 0 | PEG | Yes | NR |
| Ishizawa, Okano, Sasaki, Tomioka &Araki, 2014 [33] | Case report | 1 | Adult-onset DM1 | 61 | M | Dysphagia, Recurrent coughs | 4– 8 | Abdominal Gastrostomy | NR | NR |
| Kiel, 1986 [34] | Case report | 1 | OPMD | 80 | F | Severe dysphagia | NR | NR | Yes | NR |
| Malik, Sharma, Moreno &Parcha, 2022 [35] | Case report | 1 | Adult-onset DM1 | 34 | F | Progressive dysphagia | 0 | PEG | Yes | Respiratory failure |
| Perie et al., 1997 [36] | Case series | 1 (4.5%) | OPMD | (68) | M | Dysphagai, weight loss, Aspiration pneumonia | 11.8 | Naso-esophageal tube | Yes | Aspiration pneumonia (died) |
| Oh, Brumfield, Hoskin, Kasperbauer &Basford, 2008 [37] | Retrospective case series | 6 (23%) | IBM | (72) | 6/20 | Aspiration pneumonia (5)Dysphagia (1) | 67 mos after diagnosis | PEG (6) | NR | Aspiration pneumonia, Respiratory failure |
| Mizuno et al., 2012 [38]** | Retrospective case series | 144 (100%) | DMD (55%)DM1 (28%)Congenital myopathies (15%)FSHD (3%) | 26 (DMD) 55 (DM1) 22/62 (Congenital myopathies) 52 (FSHD) (at time of placement) | NR | Dysphagia (105)Malnutrition (29)Recurrent respiratory infections (21)Trouble tube feeding (11)Digestive symptoms (10) | NR | PEG (118)Laparostomy (17)Unknown (12) | NR | Cutaneous symptoms, Respiratory failure, Problems with tube, Accidental tube removal, Digestive symptoms, Peritonitis |
DM1 = Myotonic Dystrophy type 1; DMD = Duchenne Muscular Dystrophy; FSHD = Facioscapulohumeral Dystrophy; IBM = Inclusion Body Myositis; OPMD = Oculopharyngeal Dystrophy; NR = Not Reported; PEG = Percutaneous Endoscopic Gastrostomy; M = Male; F = Female. *Diagnosed when visiting the hospital for dysphagia symptoms. **DMD and DM1 were compared, therefore the information on the tube indications and type, weight loss and complications are only described for these diagnoses.