Table 2.

Caregiver Disease Understanding.

	Cohort 1 (2012), N = 114	Cohort 2 (2018), N = 40	Total Sample (Pooled Data)	P a
Variable	n (%)	n (%)	n (%)
Caregiver-reported knowledge about patient’s disease and prognosis
Dementia type
Mild cognitive impairment	34 (29.8)	7 (17.5)	41 (26.6)	.15
Dementia	37 (32.4)	16 (40.0)	53 (34.4)	.44
Alzheimer disease	35 (30.7)	19 (47.5)	54 (35.0)	.08
Vascular dementia	4 (3.5)	3 (7.5)	7 (0.4)	.38
Lewy body dementia	11 (9.6)	2 (5.0)	13 (0.8)	.52
Frontotemporal dementia	5 (4.3)	1 (2.5)	6 (0.4)	>.99
Old age	5 (4.3)	0 (0.0)	5 (0.3)	.33
Other	15 (13.1)	0 (0.0)	15 (0.9)	.01
Don’t know	4 (3.5)	2 (5.0)	6 (0.4)	.65
Stage of dementia				.94
Early	46 (41.0)	15 (37.50)	61 (40.1)
Middle	35 (31.3)	15 (37.5)	50 (32.9)
Advanced	22 (19.6)	7 (17.5)	29 (19.1)
Don’t know	9 (8.04)	3 (7.5)	12 (0.7)
Dementia is curable				.32
Yes	3 (2.65)	0 (0.0)	3 (0.2)
No	88 (77.9)	36 (90.0)	124 (81.0)
Don’t know	22 (19.5)	4 (10.0)	26 (17.0)
Dementia is terminal
Yes	44 (38.6)	21 (52.5)	65 (42.2)	.015
No	37 (32.46)	16 (40.0)	53 (34.4)
Don’t know	33 (28.9)	3 (7.5)	36 (23.3)
Knowledgeable about cause of dementia				.25
Yes	58 (54.21)	28 (70.0)	86 (58.0)
No	14 (13.1)	4 (10.0)	18 (12.2)
Neutral	58 (54.2)	8 (20.0)	86 (58.5)
Knowledgeable about future challenges				.38
Yes	58 (54.0)	28 (70.0)	86 (58.5)
No	35 (32.7)	8 (20.0)	43 (29.0)
Neutral	14 (13.1)	4 (10.0)	18 (12.2)
Doctor talked with you/PwD about life expectancy/prognosis				.027
Yes	28 (25.0)	18 (45.0)	46 (30.2)
No	84 (75.0)	22 (55.0)	106 (69.7)
Estimated life expectancy/prognosis, years				.36
>10	15 (13.4)	5 (12.5)	20 (13.2)
5-10	31 (27.7)	8 (20.0)	39 (25.7)
3-5	11 (9.8)	5 (12.5)	16 (10.5)
0-2	6 (5.4)	6 (15.0)	12 (7.9)
Don’t know	49 (43.8)	16 (40.0)	65 (42.8)

^aCohort 1 versus cohort 2.