Table 3.
Palliative Care Readiness, Knowledge, and Advance Care Planning.
| Cohort 1 (2012), N = 114 |
Cohort 2 (2018), N = 40 |
Total Sample (Pooled Data) |
P a | |
|---|---|---|---|---|
| Variable | n (%) | n (%) | n (%) | |
| Readiness for services | ||||
| Education and support for future problems | .56 | |||
| Useful now | 33 (31.7) | 11 (27.5) | 44 (30.5) | |
| Useful later | 47 (45.2) | 19 (47.5) | 66 (45.8) | |
| Not useful | 24 (23.0) | 10 (25.0) | 34 (24.6) | |
| Interested in discussing goals of care | .70 | |||
| Useful now | 28 (27.2) | 10 (25.0) | 38 (26.5) | |
| Useful later | 21 (30.1) | 12 (30.0) | 43 (30.0) | |
| Not useful | 44 (42.7) | 18 (45.0) | 62 (43.3) | |
| Physician home visits/home-based care | .15 | |||
| Useful now | 15 (15.0) | 7 (17.5) | 22 (15.7) | |
| Useful later | 48 (48.0) | 12 (30.0) | 60 (42.8) | |
| Not useful | 36 (36.0) | 21 (52.5) | 16 (11.4) | |
| Counselors for spiritual care | .027 | |||
| Useful now | 16 (16.3) | 2 (5.13) | 18 | |
| Useful later | 34 (34.6) | 7 (17.9) | 41 | |
| Not useful | 48 (48.9) | 30 (76.9) | 78 (56.9) | |
| Information about community resources | .10 | |||
| Useful now | 28 (27.2) | 9 (22.5) | 37 (25.9) | |
| Useful later | 56 (54.4) | 16 (40.0) | 72 (50.3) | |
| Not useful | 19 (18.4) | 15 (37.5) | 34 (23.7) | |
| Knowledge | ||||
| Knowledgeable about palliative care | .39 | |||
| Yes | 34 (32.3) | 16 (40.0) | 50 (34.4) | |
| No | 35 (33.3) | 15 (37.5) | 50 (34.4) | |
| Neutral | 36 (34.3) | 9 (22.5) | 45 (31.0) | |
| Confident in family/support system to help physically care for patient | .75 | |||
| Yes | 50 (46.2) | 23 (57.5) | 73 (49.3) | |
| No | 31 (28.7) | 10 (25.0) | 41 (27.7) | |
| Neutral | 27 (25.0) | 7 (17.5) | 34 (22.9) | |
| Confident in ability to manage future challenges | .20 | |||
| Yes | 43 (39.8) | 22 (56.4) | 65 (44.2) | |
| No | 33 (30.5) | 8 (20.5) | 41 (27.9) | |
| Neutral | 32 (29.6) | 5 (12.8) | 31 (21.1) | |
| Advance care planning | ||||
| Discussion with PwD about end-of-life wishesb | ||||
| Yes | b | 21 (67.74) | 21 (67.74) | |
| No | b | 9 (29.03) | 9 (29.03) | |
| Don’t know | b | 1 (3.23) | 1 (3.23) | |
| Patient has advance directive or living willb | ||||
| Yes | b | 19 (61.3) | 19 (61.3) | |
| No | b | 8 (25.8) | 8 (25.8) | |
| Don’t know | b | 4 (12.9) | 4 (12.9) | |
| Goals of care and values discussion with physicianb | ||||
| Yes | b | 12 (38.7) | 12 (38.7) | |
| No | b | 18 (58.1) | 18 (58.1) | |
| Don’t know | b | 1 (3.23) | 1 (3.23) | |
Abbreviation: PwD, persons with dementia.
a
Cohort 1 versus cohort 2.
b
Not assessed in cohort 1.