Table 2.
Overview of the Selected Guidelines
| Guideline title (year published, country) Short title | Target population (settings) | Subgroups with special consideration | Primary end users | Guideline development group | aStrength (S, W/C, A, EO): number of recommendations | bQuality of evidence (H, M, L, VL): number of recommendations | External review/consultations |
|---|---|---|---|---|---|---|---|
| Occupational therapy practice guidelines for adults with Alzheimer’s disease and related major neurocognitive disorders (2017, United States) OT | People with dementia and their caregivers (not specified) | Adults with Alzheimer’s disease (AD) and related major neurocognitive disorders (MNCDs; vascular dementia, dementia with Lewy bodies, frontotemporal dementia) | Occupational therapists (OTs) and OT assistants; people who manage, reimburse, or set policy regarding OT services, understand the contribution of occupational therapy in providing services to adults with AD or MNCD | OTs with specialty expertise | A (S): 15 B (S): 12 C (W/C): 8 D (A): 4 I (EO): 18 NP: 2 |
Strong (H): 17 Moderate (M): 15 Limited/insufficient (L): 18 Mixed/disparity: 9 |
Consumer representative and policy experts |
| Delirium, Dementia, and Depression in Older Adults: Assessment and Care (2nd ed.; (2016, Canada) RN | Older adults aged 65 and older (all settings) | People with delirium, dementia, and/or depression | Registered nurses | Registered nurses with specialty expertise | No information provided | Ia (H): 25 Ib (H): 0 IIa (M): 0 IIb (M): 0 III (L): 0 IV (L): 0 V (VL): 23 Ia and V: 11 |
Registered nurses, other health care providers, nurse executives, administrators, research experts, interdisciplinary team members, educators, nursing students, or patients/family |
| Dementia: assessment, management and support for people living with dementia and their carers (2018, United Kingdom) NICE | Adults aged 40 and older living with dementia or suspected dementia, families and carers (all settings) | Special consideration to the diverse attitudes and responses of different ethnic and cultural groups | People using NHS/social care services, families and carers, and public; health/social care staff; commissioners/regulators/providers of dementia services; housing associations, private/voluntary organizations | Multidisciplinary experts | Strong for/against (S): 32 Weak for/against (W/C): 12 |
High (H): 0 Moderate–high: 2 Moderate (M): 3 Low (L): 0 Very low–low: 2 Very low (VL): 0 Very low–moderate: 4 Very low–high: 4 NA: 29 |
Registered stakeholders and patient and public involvement group |
| Clinical practice recommendations to guide physical therapy practice for Huntington’s disease (2020, United States) HD_PT | People with Huntington’s disease (HD; all settings) | No information provided | Rehabilitation professionals and referring physicians providing care to persons with HD | Physical therapists with expertise | Strong (S): 2 Weak (W/C): 2 Expert opinion (EO): 3 |
cLevel 1–3: 1 Level 1–4: 1 Level 1, 2, and 4: 1 Level 1 and 5: 1 Level 2 and 5: 1 Level 5: 2 |
Adults with HD and families, physical and speech therapists, nurses, neurologists, psychologists, HD researchers |
| Clinical Practice Guidelines and Principles of Care for People with Dementia (2016, Australia) GAC | People of all ages with all the major forms of dementia, families and carers (all settings) | People with culturally and linguistically diverse backgrounds (incl. indigenous Australians) | Staff working with people with dementia in the health and aged care sectors in Australia | Multidisciplinary experts | Evidence-based (S): 13 Consensus-based (W/C): 3 Practice point (EO): 29 |
High (H): 0 Moderate (M): 1 Low (L): 9 Very low (VL): 3 NA: 32 |
Public consultations including people living with dementia and family |
| International Guidelines for the Treatment of Huntington’s disease (2019, Europe) EHDN | People with Huntington’s disease (primary care and specialist clinics) | No information provided | General practitioners, specialists | Multidisciplinary experts | No information provided | Level 1 (H): 0 Level 2 (M): 7 Level 3 (L): 18 Level 4 (L): 0 NA: 94 |
Multiple patient’s associations |
Notes: Recommendations included in this review are relevant to “dementia rehabilitation” defined in this project.
aEach guideline has its own classification system for the strength of each recommendation. We have grouped them using the following: strong (S), weak or conditional (W/C), expert opinion (EO).
bEach guideline has its own classification system for the quality of evidence for each recommendation. We have grouped them using the following: high (H) indicating further research is very unlikely to change our confidence in the estimate of effect; moderate (M) indicating further research is likely to have an important impact on our confidence in the estimate of effect and may change the estimate; low (L) indicating further research is very likely to have an important impact on our confidence in the estimate of effect and is likely to change the estimate; very low (VL) indicating any estimate of effect is very uncertain.
cLevel 1 experimental designs, Level 2 quasi-experimental designs, Level 3 observational-analytic designs, Level 4 observational-descriptive studies, Level 5 expert opinion and bench research.