Table 3.
Caregiver concerns for the adults with Down syndrome they care for, stratified by age of the individual with Down syndrome
Age of person with Down syndrome | ||||||||||
---|---|---|---|---|---|---|---|---|---|---|
Total | 18–29 years | 30–45 years | 46+ years | |||||||
N=438 | N=208 | N=160 | N=70 | |||||||
N | % | N | % | N | % | P-Value | N | % | P-Value | |
Home modifications/safety | 55 | 12.6 | 24 | 11.5 | 13 | 8.1 | 0.08 | 16 | 22.9 | <0.01 |
Future residential options | 272 | 62.1 | 128 | 61.5 | 90 | 56.3 | <0.01 | 39 | 55.7 | <0.01 |
Physical health | 236 | 53.9 | 107 | 51.4 | 86 | 53.8 | 0.5 | 43 | 61.4 | 0.09 |
Mental health | 191 | 43.6 | 96 | 46.2 | 63 | 39.4 | 0.02 | 27 | 38.6 | 0.03 |
Alzheimer’s disease /Dementia | 232 | 53.0 | 88 | 42.3 | 81 | 50.6 | <0.01 | 47 | 67.1 | <0.01 |
Guardianship/legal options | 107 | 24.4 | 60 | 28.8 | 30 | 18.8 | 0.02 | 17 | 24.3 | 0.5 |
Employment/employment alternatives | 277 | 63.2 | 108 | 51.9 | 47 | 29.4 | 0.1 | 2 | 2.9 | 0.3 |
Financial security | 170 | 38.8 | 106 | 51.0 | 50 | 31.3 | <0.01 | 14 | 20.0 | <0.01 |
Adult education opportunities | 91 | 20.8 | 61 | 29.3 | 26 | 16.3 | <0.01 | 2 | 2.9 | 0.1 |
Friendships/relationships | 277 | 63.2 | 148 | 71.2 | 107 | 66.9 | 0.5 | 22 | 31.4 | <0.01 |
Safety and neglect | 168 | 38.4 | 97 | 46.6 | 54 | 33.8 | 0.02 | 17 | 24.3 | <0.01 |
Transportation support | 133 | 30.4 | 82 | 39.4 | 43 | 26.9 | 0.03 | 8 | 11.4 | <0.01 |
Bold indicates statistical significance at alpha=0.05
For age comparisons, 18–29 years is the referent group
P values calculated using logistic regression modeling the effect of age on caregiver concern, adjusted for caregiver education.