Table 4.

Caregiver reported supports needed for caregivers of adults with Down syndrome

			Age of person with Down syndrome
	Total		18–29 years		30–45 years			46+ years
	N=438		N=208		N=160			N=70
	N	%	N	%	N	%	P-Value	N	%	P-Value
Educational info about DS caregiving	80	18.3	27	13.0	31	19.4	0.1	18	25.7	0.6
Access to comm. health care	58	13.2	23	11.1	22	13.8	<0.01	13	18.6	0.5
Providers are knowledgeable about DS	245	55.9	116	55.8	90	56.3	0.8	39	55.7	0.7
Employers understand caregiver duties	41	9.4	30	14.4	5	3.1	<0.01	6	8.6	0.2
Caregiver support groups	80	18.3	43	20.7	17	10.6	<0.01	20	28.6	0.4
Respite care/home health care	198	45.2	94	45.2	62	38.8	0.2	42	60.0	0.02
How to talk about Alzheimer’s disease with loved one	35	8.0	11	5.3	10	6.3	0.4	13	18.6	0.5
Environmental modifications	34	7.8	10	4.8	7	4.4	0.01	16	22.9	0.4
Financial planning for loved one	159	36.3	94	45.2	48	30.0	<0.01	17	24.3	<0.01
Financial planning for self	81	18.5	54	26.0	20	12.5	<0.01	7	10.0	0.01
End of life planning for loved one	116	26.5	47	22.6	40	25.0	0.5	29	41.4	<0.01

Bold indicates statistical significance at alpha=0.05

For age comparisons, 18–29 years is the referent group

P values calculated using logistic regression modeling the effect of age on caregiver concern, adjusted for caregiver education