Table 5.
Recommendations for Sydney Cancer Survivorship Centre clinic improvements
Time frame | Resources required for implementation | Recommendations |
---|---|---|
Short term | Low |
- Provide information to survivors about what to expect during the first clinic, e.g. provide an A4 summary sheet and/or short video of how the clinic runs - Survivors should be advised to bring a friend or family member (i.e. caregiver) with them to clinics - An individual (e.g. final team member seeing a survivor or the Survivorship Nurse Consultant) should (i) verbally inform survivors they have seen every team member and their clinic review is complete; (ii) provide the follow-up plan, including recommended dates; and (iii) answer remaining questions - Communicate to survivors the purpose and value of discussing symptoms (i.e. acknowledgement is important even if treatment not available) - Better clinician communication of interventions available to mitigate effects of long-term treatment sequelae (e.g. peripheral neuropathy) - Use of patient connect services to link people recently completed treatment to longer-term survivors for support - Educate survivors and caregivers regarding the interaction between each of their feelings of stress - Advise caregivers to be aware of their own mental health and wellbeing, and to seek professional help if required |
High |
- Provide annual feedback to survivors and GPs on their PROMs - Feedback should include individual progress, change in symptoms, mood and health - Access to stories from other survivors with similar diagnosis, age, and sex about comparative recovery trajectories (e.g. video interview) - Make it clear to survivors that, based on needs assessed in follow-up clinics, access to additional MDT members beyond the medical oncologist and clinical nurse consultant is available |
|
Long term | Low |
- Telehealth (i.e. video) consultations for longer-term clinic follow-up based on survivor preference, symptom profile, and needs - Introduction should follow a period of in-person clinic reviews, during which survivor education and confidence regarding symptom recognition and self-examination are developed - Improve communication between the SCSC clinic and GPs of survivors about individuals’ health, progress, and plans |
High |
- Alternate locations for the SCSC clinic to distinguish it from chemotherapy treatment - Increased allocation of resources to the adjunctive SCSC clinic services, including the gym and cottage - Increase total capacity of each service to accommodate a greater number of survivors, length of time survivors may access the service, and increase service hours to accommodate working survivors - Greater community education about cancer-specific needs and capabilities, specifically for GPs and personal trainers at community gyms, should be supported with information seminars run by the SCSC clinic MDT members |
Classification of low and high resource recommendations was based on assumptions regarding resources (staff, Information Technology, policy change, etc.) required to implement them in practice