Table 2.
PATIENTs' PERCEPTIONS OF THE G-EDUCAINFLAMATORIA WEBSITE (n = 398) | ||||
---|---|---|---|---|
Do you think it is important that your doctor or nurse recommends a quality website? (score from 1 to 5, where 1 is “not important at all” and 5 is “very important”) | ||||
1 | 2 | 3 | 4 | 5 |
0 (0) | 2 (0.5) | 17 (4.3) | 87 (21.9) | 292 (73.3) |
The G-Educainflamatoria website hosts a forum where patients can ask questions and IBD professionals answer them. Would you use it to consult a specialist if you needed information? | ||||
No | 58 (14.6) | |||
Yes | 340 (85.4) | |||
Do you find the G-Educainflamatoria content easy to understand? (score from 1 to 5, where 1 is “very difficult to understand” and 5 is “very easy to understand”) | ||||
1 | 2 | 3 | 4 | 5 |
5 (1.3) | 8 (2.0) | 32 (8.0) | 151 (37.9) | 202 (50.8) |
On the G-Educainflamatoria home page, there is a search engine for searching information. Do you think it is useful? (score from 1 to 5, where 1 is “I do not think it is useful” and 5 is “it is very useful”) | ||||
1 | 2 | 3 | 4 | 5 |
4 (1.0) | 5 (1.3) | 43 (10.8) | 151 (37.9) | 195 (49.0) |
Score the usefulness of the G-Educainflamatoria website content from 1 to 5 (where 1 is “it does not seem to be useful at all” and “it seems very useful for learning about my disease”). | ||||
1 | 2 | 3 | 4 | 5 |
2 (0.5) | 4 (1.0) | 29 (7.3) | 142 (35.7) | 221 (55.5) |
Score from 1 to 5 the confidence you get from knowing that the G-Educainflamatoria webpage is endorsed by the IBD National Scientific Organization and that it is recommended by your medical team (where 1 is “I do not feel confident at all” and 5 is “I feel reassured and very confident with a website recommended by my medical team”). | ||||
1 | 2 | 3 | 4 | 5 |
2 (0.5) | 4 (1.0) | 15 (3.8) | 34 (8.5) | 343 (86.2) |
Would you like to see the website information organized by topic menus, such as a “Newly diagnosed” menu or “Perianal disease” menu or “Disease acceptance” menu? | ||||
No | 33 (8.3) | |||
Yes | 365 (91.7) | |||
Which topic menu would you like to find in G-Educainflamatoria? (Multiple choices were allowed) | ||||
Newly diagnosed | 338 (84.9) | |||
Nutrition and diet | 338 (84.9) | |||
Emotional well-being | 318 (79.9) | |||
IBD follow-up and checkups | 239 (60.1) | |||
Women and IBD | 179 (45.0)a | |||
Would you like to take part in virtual educational activities on the G-Educainflamatoria website with the aim of improving aspects related to your disease (adherence, nutrition, healthy lifestyle, etc.) or would you prefer to attend them in person? | ||||
On the online platform | 279 (70.1) | |||
In person | 103 (25.9) | |||
It does not matter to me | 16 (4.0) | |||
Would you be willing to periodically answer questions aimed at assessing your viewpoint or degree of knowledge about specific aspects of your disease? | ||||
Yes | 338 (84.9) | |||
No | 40 (10.1) | |||
It depends on the topics; I would decide on the spot | 20 (5.0) |
Results presented as n (%) unless otherwise stated.
After adjusting by sex, 96.6% of women wished a “Women and IBD” menu existed.
IBD, inflammatory bowel disease.