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. 2023 Oct 17;65:102280. doi: 10.1016/j.eclinm.2023.102280

Table 1.

Characteristics of previous studies assessing the incidence and/or prevalence of AIH included in our systematic review.

First author, publication year Country Patient identification Diagnosis criteria Study design Period Age of patients Total sample Patients with AIH
Bjarnason et al., 1982 Iceland Liver biopsy Clinical, biochemical, and histological features Retrospective 1970–1979 Adults & Children 225,549 18
Hodges et al., 1982 United Kingdom Hospital database + liver biopsy Clinical, biochemical, and histological features Retrospective 1976–1980 Adults 404,000 14
Ritland et al., 1985 Norway Hospital database + liver biopsy Clinical, biochemical, and histological features Retrospective 1981 Adults 4,117,647a 49
Homberg et al., 1987 France Hospital Clinical, biochemical, and histological features Retrospective 1975–1984 Adults & Children 10,761,625 47
Tanner et al., 1989 United Kingdom Hospital database + liver biopsy Clinical, biochemical, and histological features Retrospective 1971–1987 Adults & Children 210,000 15
Byron et al., 1996 Canada Hospital Clinical, biochemical, and histological features Retrospective 1987–1993 Adults & Children 650,000 39
Boberg et al., 1998 Norway Hospital Original IAIHG Prospective, Cohort 1986–1995 Adults 130,000 25
Lee et al., 2001 Singapore Hospital Original IAIHG Retrospective 1990–1996 Adults 567,685 24
Hurlburt et al., 2002 United States Hospital Revised IAIHG Retrospective 1984–2000 Adults & Children 114,219 49
Primo et al., 2004 Spain Hospital Revised IAIHG Prospective, Cross-sectional 1990–2003 Adults 112,003 13
Koay et al., 2006 Taiwan Hospital Revised IAIHG Retrospective, Cohort 2000–2004 Adults 1,846,464 48
Whalley et al., 2007 United Kingdom Hospital Code-based definition Retrospective, Cross-sectional 2003–2004 Adults 200,000 6
Werner et al., 2008 Sweden Hospital Revised IAIHG Retrospective 1990–2003 Adults & Children 715,000 473
Primo et al., 2009 Spain Hospital Revised or Simplified IAIHG Prospective, Cohort 2003 Adults & Children 1,774,736 19
Ngu et al., 2010 New Zealand Hospital Revised IAIHG Retrospective, Prospective 2001–2007 Adults & Children 494,170 121
Delgado et al., 2013 Israel Hospital Simplified IAIHG Retrospective 1995–2010 Adults 995,024a 109
Deneau et al., 2013 United States Hospital Simplified IAIHG Retrospective, Cohort 2005–2011 Children 1,466,667a 44
Gronbaek et al., 2014 Denmark Hospital Code-based definition Retrospective 1994–2012 Adults & Children 5,648,536a 1350
Van Gerven et al., 2014 The Netherlands Hospital Revised or Simplified IAIHG Retrospective 2000–2010 Adults 799,000 146
Chong et al., 2015 Brunei Darussalam Hospital Simplified IAIHG Retrospective 2011 Adults & Children 459,016a 28
Jimenez et al., 2015 Canada Hospital Revised IAIHG Retrospective, Cohort 2000–2009 Children (0–18 years) 70,277,839 159
Yoshizawa et al., 2016 Japan Hospital (Questionnaire) Revised IAIHG Retrospective, Prospective 2004–2014 Adults 187,205 48
Danielsson et al., 2017 Sweden Hospital Revised IAIHG Retrospective 1990–2009 Adults & Children 3,664,740a 634
Kim et al., 2017 South Korea National Health Insurance Service database Code-based definition Retrospective 2009–2013 Adults & Children 50,008,453 12,447
Sharma et al., 2017 United States Medical records Clinical, biochemical, and histological features Retrospective 1990–2015 Adults 97,222a 70
Costaguta et al., 2018 Argentina Hospital Simplified IAIHG Retrospective, Cohort 2003–2013 Children (0–18 years) 10,017,106 56
Puustinen et al., 2019 Finland Social insurance database Code-based definition Retrospective 2008–2015 Adults & Children 6,202,797a 887
Valgeirsson et al., 2019 Iceland Hospital Simplified IAIHG Retrospective 2006–2015 Adults & Children 342,007a 92
Gronbaek et al., 2020 England Hospital Code-based definition Retrospective, Cohort 1997–2015 Adults & Children 3,591,476a 691
Sebode et al., 2020 Germany Health insurance data Code-based definition Retrospective 2011–2014 Adults & Children 8,100,000 1700
Lamba et al., 2021 New Zealand Hospital Simplified or Revised IAIHG Prospective, Cohort 2008–2016 Adults & Children 599,900 165
Tunio et al., 2021 United States Electronic Health Record data Code-based definition Retrospective 2014–2019 Adults & Children 37,161,280 11,600
Webb et al., 2021 United Kingdom Primary care records Code-based definition Retrospective, Cohort 2002–2016 Adults & Children 3,278,496a 1116
Bittermann et al., 2022 United States Administrative claims data Code-based definition Retrospective, Cohort 2009–2018 Adults 18,103,568 3386
Sutton et al., 2022 United Kingdom Hospital Clinical, biochemical and histological features Retrospective 2013–2018 Children (0–16 years) 918,000 38
Nielsen et al., 2023 Denmark Hospital Simplified IAIHG Retrospective, Cohort 2004–2021 Adults & Children 48,000 45
Hitawala et al., 2023 United States Electronic Health Record data Code-based definition Retrospective 1999–2022 Adults 70,352,325 20,550

AIH: autoimmune hepatitis; IAIHG: international autoimmune hepatitis group.

a

These results were calculated and estimated using original data.