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. 2023 Oct 20;10:e48632. doi: 10.2196/48632

Table 1.

Sample of user quotes.

End user type Digital patient-reported outcome measure component Quote
Patient user Smartphone app
  • “I found the app easy to download and very user friendly. I’m looking forward to using it more and intrigued as to the next steps, hoping it will help me to get the right support and care.”

Senior administrator (administrator user) Overall platform
  • “The C19(YRS) app has literally been a game changer, reducing the patient’s waiting time massively.”

  • “The app is user friendly and generally patients complete their C19-YRS on the day we send the app info out, resulting in their waiting time being reduced for their virtual appointment by at least 10-14 days.”

  • “The patient information is so easy to take from the platform and add on to SystmOne and when we then require them to complete other measures it’s a super easy process to log back into the app and amend which requirements we need next from them. Postage and printing time and costs have been reduced massively, saving us several hours of work each week printing letters, posting out the paper questionnaires, asking patients to return it to us in an SAE and then having to scan the paper copy on to SystmOne.”

Community advanced practitioner (clinician user) Patient-facing app
  • “From experience in the first wave, 88 patients were screened by phone by a member of the trust totalling on average of 1 hour each. With the number potentially now totalling a minimum of 10x this and with the need to complete 3x per patient the time taken and cost to the trust will be extensive.”

  • “On average the app takes clinicians 10 minutes or less to complete an assessment with patients.”

Clinical service lead (clinician user) Overall platform
  • “Lanarkshire have been so impressed with the capacity and capability the digital C19-YRS system brings to our Long Covid Rehabilitation Pathway. Since adoption, people with Long Covid have their initial screening three weeks faster, on average, meaning they are triaged and added to the waiting list 3 weeks sooner.”

  • “Administration report a 90% reduction in time spent supporting screening. Clinicians have easy access to questionnaires and summary reports with a 50% reduction in the time taken to triage each person.”

  • “Most importantly, our people with Long Covid on the pathway are spending less time and precious energy to complete the questionnaires. They have access to their own data and can track their own progress – this supports shared decision making regarding care planning, thus really helping the pathway optimise person-centred care. People with Long Covid also have easy access to evidence-based, self-management resources and information.”

  • “The platform is intuitive to use for all concerned and there are multiple options for people who may have issues with digital access and literacy. There has been ample opportunity to tailor the platform to the needs of our service – changes have been quick and well-supported.”

  • “On a population level, the data the system generates is crucial to build an understanding of the needs of people with Long Covid and evaluate whether our pathway is having an impact. This in turn informs the strategic direction of support for people with Long Covid in Lanarkshire, and across Scotland. The import and potential of a national dataset for Long Covid in Scotland cannot be overemphasised.”