Table 2. Main findings from pre-pilot study testing REGAIN intervention delivery.
Component | Finding(s) | Implications for REGAIN Intervention |
---|---|---|
IT/online
issues |
Participants not placing device in adequate
position for practitioner to view during exercises. Some older participants had difficulty navigating Zoom/MS Teams, enabling microphone/camera and accessing link to session. Some participants accessed the session through their Smartphone which limited functionality (cannot see rest of group) one person held smartphone throughout, so very jerky & too close up; not possible for practitioner to safely monitor exertion levels or technique. |
During 1:1 consultation need to go through set up
- test their device and where they will set up the camera etc. Log in to zoom and do test session. Practitioners and ‘co-pilot’ to log in early to group sessions as considerable time needed to let everyone into session. Amend workbook/telephone screening calls - smartphone not good enough unless they can 'cast' to a tv from the phone. Laptops & tablets preferred. |
Progression | Participants found the progression more
acceptable once they had gained confidence in the sessions and felt included in short ’debrief’ post exercise with rest of group. |
Class templates amended so that Practitioners can alter
the duration of exercises and recovery periods to suit each group. Participants to be asked how they feel the day after the session each week as well as post session to guard against post exertional fatigue. |
Safety | Participants would frequently talk or make
noise throughout, inadvertently interrupting practitioners’ instructions. Occasionally participants would disappear from view- going to toilet/answering door- practitioners unsure if patients unwell. |
All participants should be instructed to mute during
exercise. Hand signals required to indicate whether easy, ok, too hard and another to say I am unwell/need to stop/etc. Set ground rules and instructions at start of each class requesting participants to signal before they leave screen. |
Very
debilitated participants |
One participant was chair bound in the same
session as another with relatively high level of fitness. Practitioners needed assistance from ‘co- pilots’ (via chat function) to adequately monitor all participants. |
Need alternative chair-based option for all exercises in
session templates. Priority should be given to enjoyment over intensity while participants gain confidence. Frequent water breaks should be given and the emphasis placed on the participant to take responsibility for own exertion level |
One to one
consultation |
Several participants flagged up for case level
mental health disorder on anxiety/depression questionnaire. More questioning during consultation revealed higher level of emotional support needed than planned. Some participants spent longer overcoming IT issues than they did talking about their long- COVID. |
Consultations need to be at least an hour in order
to introduce website and sign-up process, triage participant for exercise classes and go through IT accessibility/optimal camera position etc. Regular meetings with psychologist planned throughout trial for ongoing advice/support for practitioners during trial. |
Behavioural
education |
Participants required more support coping with
anxiety/avoidance around social interaction and not just physical activity. Goal setting session difficult as most participants experienced frequent setbacks and have unknown timescale of their recovery. Some participants dominated in support session and others barely spoke. Practitioners unsure how long to ‘let it go’ before interrupting. Practitioner also unsure about PTSD issues some participants maybe facing and giving advice outside of their competency. |
Additional material included in the participant workbook
on negative thought patterns. Practitioners need to approach long COVID differently to traditional rehabilitation for long term conditions with linear improvement each week Health psychologists to do additional training with practitioners regarding managing groups. |