Table 2. Main findings from pre-pilot study testing REGAIN intervention delivery.
Component | Finding(s) | Implications for REGAIN Intervention |
---|---|---|
IT/online
issues |
Participants not placing device in adequate
position for practitioner to view during exercises. Some older participants had difficulty navigating Zoom/MS Teams, enabling microphone/camera, and accessing link to session. Some participants accessed the session through their Smartphone which limited functionality (couldn’t see the rest of group). One person held smartphone throughout, so very jerky & too close; it was not possible for the practitioner to safely monitor exertion levels or technique. |
During 1:1 consultation there is a need to go through
set up - test the device and where the camera will be set up. etc. Log in to zoom and do test session. Practitioners and ‘co-pilot’ to log in early to group sessions as considerable time needed to let everyone into session. Amend workbook/telephone screening calls to indicate that a smartphone not good enough unless it can be ‘cast’ to a TV. Laptops & tablets preferred. |
Progression | Participants found the progression more
acceptable once they had gained confidence in the sessions and felt included in short ’debrief’ post exercise with rest of group. |
Class templates amended so that Practitioners could
alter the duration of exercises and recovery periods to suit each group. Participants to be asked how they felt the day after each session, as well as post session, to guard against post exertional fatigue. |
Safety | Participants would frequently talk or make
noise throughout, inadvertently interrupting practitioners’ instructions. Occasionally participants would disappear from view- going to toilet/answering door- practitioners were unsure if the patient was unwell. |
All participants should be instructed to mute during
exercise. Hand signals required to indicate whether easy, ok, too hard and another to say I am unwell/need to stop/etc. Set ground rules and instructions at start of each class requesting participants to signal before they leave the screen. |
Very
debilitated participants |
One participant was chair bound in the same
session as another with a relatively high level of fitness. Practitioners needed assistance from ‘co- pilots’ (via chat function) to adequately monitor all participants. |
Need alternative chair-based option for all exercises
in the session templates. Priority should be given to enjoyment while participants gain confidence. Frequent water breaks should be provided and the emphasis placed on the participant to take responsibility for their own exertion level |
One to one
consultation |
Several participants were identified as having case
level mental health disorder on anxiety/depression questionnaire. More discussion during the consultations revealed a higher level of emotional support needed than initially planned. Some participants spent longer overcoming IT issues than they did talking about their long- COVID. |
Consultations should be at least an hour in order
to introduce website and sign-up process, triage participant for exercise classes, and go through IT accessibility/optimal camera position etc. Regular meetings with psychologist planned throughout trial for ongoing advice/support for practitioners during trial. |
Behavioural
education |
Participants required more support coping with
anxiety/avoidance around social interaction and not just physical activity. Goal setting session was difficult as most participants experienced frequent setbacks and had unknown timescale of recovery. Some participants dominated the support sessions and others barely spoke. Practitioners were unsure how long to ‘let it go’ before interrupting. Practitioners were also unsure about PTSD issues that some participants may be facing, and giving advice outside of their competences. |
Additional material included in the participant workbook
relating to negative thought patterns. Practitioners should approach long COVID differently to traditional rehabilitation for long term conditions with no expectation of linear improvement each week Health psychologists to do additional training with practitioners regarding managing groups. |