Table 2.

Association between demographic and socioeconomic factors and the odds of missing Systemic Lupus Erythematosus Disease Activity Index (SLEDAI-2K) and/or SLICC Damage Index (SDI) at enrollment among participants with childhood-onset SLE enrolled in the CARRA Registry (N = 758)^a

	OR (95% CI)b
Sex assigned at birth
Male	Reference
Female	1.98 (0.89, 4.42)
Gender
Male	Reference
Female	2.03 (0.91, 4.53)
Other	--
Missing	--
Age	0.92 (0.85, 0.99)
Race and ethnicity
Asian/NHPI	0.52 (0.22, 1.26)
Hispanic	0.86 (0.47, 1.55)
Non-Hispanic Black/African American	0.63 (0.34, 1.18)
Non-Hispanic Other (NA/AN, Middle Eastern, North African, race not previously mentioned, multiracial)	1.01 (0.44, 2.30)
Non-Hispanic White	Reference
Missing	0.91 (0.19, 4.22)
Household income
<$25,000	2.57 (0.91, 7.31)
$25,000-49,999	1.77 (0.61, 5.11)
$50,000-74,999	0.76 (0.21, 2.78)
$75,000-99,999	0.41 (0.08, 2.22)
$100,000-150,000	1.98 (0.63, 6.21)
>$150,000	Reference
Prefer not to answer	1.92 (0.69, 5.36)
Missing	1.24 (0.40, 3.83)
Parental educational attainment
<High school	0.93 (0.41, 2.11)
High school graduate or GED	0.62 (0.31, 1.23)
College	0.57 (0.31, 1.08)
Graduate school	Reference
Missing	0.40 (0.18, 0.91)
Insurance status
Private	Reference
Government-assisted	2.04 (1.22, 3.41)
Other, including non-US insurance	0.88 (0.32, 2.39)
None	1.19 (0.26, 5.45)
Missing	2.53 (1.01, 6.34)

^aExcludes 8 participants missing age-related variables.

^bModels run separately for each demographic or socioeconomic factor and adjusted for age (except age model), disease duration at enrollment (continuous), and time since first seen by a pediatric rheumatologist (continuous).

CI: Confidence interval; GED: General Equivalent Degree; NA/AN: Native American or Alaska Native; NHPI: Native Hawaiian or Pacific Islander; OR: Odds ratio; SLE: Systemic lupus erythematosus