Table 2.
List of Identified Severe Asthma Registries Worldwide
| Country | Name | Start Year | Number of Centres | Number of Patients | Date of Estimation |
|---|---|---|---|---|---|
| ISAR-affiliated severe asthma registries | |||||
| Argentina | Argentinian Severe Asthma Registry | 2019 | 19 | 126 | 11/11/21 |
| Australia and New Zealand | Australasian Severe Asthma Network Registry (ASAN), previously Severe Asthma Web-based Database (SAWD)10 | 2019 | 23 | 400 | 09/11/21 |
| Belgium | University of Liege | 2023 | 1 | 744 | 19/06/2023 |
| Bulgaria | Bulgarian Severe Asthma Registry | 2019 | 11 | 325 | 08/07/22 |
| Canada | Canadian Severe Asthma Registry | 2018 | 10 | 253 | 30/06/22 |
| Colombia | Colombian Severe Asthma Registry | 2019 | 3 | 291 | 29/06/22 |
| Denmark | Danish Severe Asthma Registry (DSAR)30 | 2018 | 9 | 567 | 08/07/22 |
| Estonia | Estonian Severe Asthma Registry | TBC | 1 | TBC | 18/12/20 |
| Greece | Greek Severe Asthma Registry | 2016 | 4 | 151 | 08/07/22 |
| India | Pulmocare Research and Education (PURE) Foundation | 2020 | 37 | 155 | 11/11/21 |
| Ireland | Irish Severe Asthma Registry | 2020 | 1 | 42 | 07/07/22 |
| Italy | Severe Asthma Network in Italy (SANI)12–16 | 2016 | 55 | 1600 | 08/11/21 |
| Japan | Kinki-Hokuriku Airway disease Conference (KiHAC)31–33 | 2019 | 17 | 185 | 10/07/22 |
| Kuwait | Kuwaiti Severe Asthma Registry | 2018 | 1 | 284 | 08/07/22 |
| Mexico | Mexican Severe Asthma Registry | 2019 | 12 | 71 | 23/07/22 |
| Poland | Polish Severe Asthma Registry | 2021 | 1 | 29 | 11/11/21 |
| Portugal | Portugal Severe Asthma Registry34 | 2018 | 18 | 132 | 07/07/22 |
| Saudi Arabia | Saudi Arabian Severe Asthma Registry | 2019 | 5 | 207 | 11/11/21 |
| Singapore | Singapore Severe Asthma Registry (S-SAR) | 2020 | 4 | 160 | 29/06/22 |
| South Korea | Korean Severe Asthma Registry (KoSAR)17 | 2018 | 1 | 163 | 29/06/22 |
| Spain | Spanish Guideline on the Management of Asthma Database (GEMA-Data) | 2017 | 50 | 715 | 12/10/21 |
| Sweden | Swedish Severe Asthma Registry – under development | TBC | 1 | TBC | Unknown |
| Taiwan | Taiwanese Severe Asthma Registry | 2019 | 14 | 276 | 11/11/21 |
| United Arab Emirates | United Arab Emirates Severe Asthma Registry | 2019 | 1 | 229 | 29/06/22 |
| United Kingdom | UK Severe Asthma Network and National Registry, previously British Thoracic Society Severe Asthma Registry18–20 | 2015 | 39 | 6225 | 08/07/22 |
| United States | National Jewish Health (NJH) | 2008 / 2017 | 1 | 5230 | 08/07/22 |
| Non-ISAR-affiliated registries | |||||
| Belgium | Belgian Respiratory Society35–37 | 2018 | 28 | 1653 | 30/06/22 |
| Brazil | Brazilian Severe Asthma Group (BraSA Group) | TBC | 16 | TBC | 14/04/21 |
| Finland | Finnish Asthma Registry (Finland) | 2020 | 3 | 200 | 01/07/22 |
| France | Recherche sur les Asthmes Sévères (RAMSES) | 2019 | 47 | 1050 | 25/10/21 |
| Germany | German Severe Asthma Network (GAN)11 | 2011 | 30 | 1200 | 12/11/21 |
| Germany | University Medical Center Essen-Ruhrlandklinik | 2020 | 1 | 100 | Unknown |
| Hungary | Hungarian Severe Asthma Registry | TBC | Unknown | Unknown | Unknown |
| Iceland | Asthmabio | 2020 | Unknown | 206 | 07/07/22 |
| Netherlands | Registry of Adult Patients with Severe Asthma for Optimal Disease Management (RAPSODI) | 2016 | 20 | 933 | 14/06/21 |
| Norway | Norwegian Severe Asthma Registry | 2022 | 1 | Zero - Patients to be enrolled | 05/08/22 |
| United States | CHRONICLE38 | 2018 | 127 | 3370 | 01/07/22 |