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. Author manuscript; available in PMC: 2023 Oct 25.
Published in final edited form as: J Prev Alzheimers Dis. 2023;10(4):847–856. doi: 10.14283/jpad.2023.32

Table 1:

List of Engagement strategies

Engagement Strategy Details
CEDAR Facebook group A private Facebook group was developed to disseminate knowledge and facilitate dialogue among prospective and existing CEDAR participants

Posts include resources and educational materials pertaining to Black brain health
Participant testimonials 3 Community-Science Partnership Board members shared their motivations for joining CEDAR and personal experiences with Alzheimer’s disease

Include both written statements posted to the Brain Health Registry website and brief videos shared with CEDAR participants via email and social media
Investigator videos Two CEDAR investigators recorded videos explaining the study and the importance of including Black adults in research

Videos distributed via social media and email
13-week email engagement campaign Series of 13 emails sent to CEDAR participants to provide educational resources pertaining to Black brain health

Emails also share recent news in the Alzheimer’s field
Blog posts Educational blog posts about brain health are distributed to prospective and existing CEDAR participants via social media channels
Compensation Compensation for completing study tasks was increased from $25 to $50 partway through the study community board members are compensated $100 per quarterly meeting attended
Landing page Participants see a culturally tailored landing page when they enroll in CEDAR

Landing page contains links to learn more about the study and links to the CEDAR Facebook page
Referrals to other studies All Black Brain Health Registry participants received an email featuring BHR and collaborator studies

Objective was to increase Black representation in studies