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. 2023 Oct 26;9(5):411–420. doi: 10.33546/bnj.2713

Table 3.

Description of educational intervention program for family caregivers of adult patients with cancer

Author (Year) Intervention / Given to / Theoretical Framework (TF) Content and Healthcare professionals involved Procedure Media / Mode of delivery / Duration / Frequency Main outcome
Belgacem et al. (2013)
RCT
France
(HIC)
  • Caregiver educational program for hematological cancer patients

  • Given to: FC (Family Caregiver)

  • TF: Not mention

  • Meal support

  • Nursing care

  • Welfare care (e.g., massage, etc.)

  • Symptom management

Healthcare professionals involved: Nurse
  • The nurse provided information related to nursing care and the expected outcome

  • Carers observed how nurses perform

  • Carers demonstrated with the supervision from nurses

  • Carers conducted care without supervision

  • Media: Leaflet

  • Delivery mode: Face to face

  • Duration: 5 weeks

  • Frequency: 1x/week

Quality of life of patients and Carers as well as Burden of Carers
Holm et al. (2016)
RCT
Sweden
(HIC)
  • Psychoeducation education to prepare the family caregivers

  • Given to: FC

  • TF: Principal knowledge-seeking and support needs of family caregivers by Andershed & Ternestedt

Promote preparedness to be caregivers:
  • Palliative diagnoses and symptom relief

  • Daily care and nutrition problems

  • Support and existential issues

Healthcare professionals involved: Doctor, nurse, and social worker/chaplain
  • The education program in group format offered in the after-hours

  • Control group: usual care (support from palliative care unit)

  • Media: Not mention

  • Delivery mode: Face to face

  • Duration: 3 weeks

  • Frequency: 1x/week for 2 hours

Preparedness for caregiving
Hudson et al. (2015)
RCT
Australia
(HIC)
  • Psychoeducation vs. usual care

  • Given to: FC

  • TF: Transactional model of stress and coping by Lazarus and Folkman

Promoting psychological well-beingHealthcare professionals involved: Nurse Two education programs: home visits and phone calls
  • Intervention 1: Home visit (1x) and phone calls (3x)

  • Intervention 2: Home visit (2x) and phone calls (2x)

  • Control group: usual care

  • Media: Guidebook

  • Delivery mode: Face-to-face and phone calls

  • Duration: 4 weeks

  • Frequency: 3 times home visits and 5 times phone calls

Psychological distress
Hudson, Aranda, and Hayman-White (2005)
RCT
Australia
(HIC)
  • Psychoeducation program

  • Given to: FC

  • TF: Transactional model of stress and coping by Lazarus and Folkman

Psychoeducational intervention:
  • Information on caregivers’ roles, getting access to information

  • Attention to carers’ own needs

  • Self-care, Spiritual care, & Problem-solving

Healthcare professionals involved: Nurse
  • First visit to deliver the module

  • Follow up through phone calls to identify new issues

  • Second visit to prepare caregivers for the end-of-life phase and bereavement

  • Media: Guidebook and Audiotape

  • Delivery mode: Face to face

  • Duration: 4 weeks

  • Frequency: 1 home visit

Readiness of family caregiver
Kizza and Muliira (2019)
Quasi experiment
Uganda
(LIC)
  • Education related to cancer pain and management

  • Given to: Patient and FC

  • TF: Not mention

Cancer pain management
Healthcare professionals involve: Nurses and peer support volunteer (PSV)
  • First visit: education about characteristics, sources, and pain management

  • Second visit: pain assessment & management

  • Follow-up support was given by PSV

  • Media: Study booklet

  • Delivery mode: Face to face

  • Duration: 12 weeks

  • Frequency: 2 visits in 45-60 minutes

Pain knowledge and pain management
Kristanti, Setiyarini, and Effendy (2017)
Quasi experiment
Indonesia
(LIC)
  • Basic care training

  • Given to: FC

  • TF: Not mention

Basic care training for family caregivers in how to complete personal hygiene for patients with cancer in a bedridden position
Healthcare professionals involved: Nurse
  • First session was in the hospital where the family observed the nurse performing personal hygiene to patients, watched a video, and read the module

  • 2 weeks later, home visit by a nurse to provide feedback

  • 2 weeks later, a nurse visited the patients’ home to evaluate and provide more feedback on caregivers’ performance

  • Media: An hour of video and a module

  • Delivery mode: Face to face

  • Duration: 4 weeks

  • Frequency: 1 education program at the hospital and 2 home visits

Quality of life family caregiver
Narayanan et al. (2023)
RCT
India
(LIC)
  • Video‑based education (VBI) vs

  • Verbal instruction (VI)

  • Given to: Patient and FC

  • TF: Not mention

  • Wound care

  • Mucositis & xerostomia,

  • Oral hygiene

Healthcare professionals involved: Nurse
Intervention group watched a video. After that, they were instructed to implement it at home
  • Media: Video

  • Delivery mode: Face to face

  • Duration: 3 weeks

  • Frequency: 15-20 mins for each patient and family caregiver

Quality of life of patients and family caregivers
Schulman-Green et al. (2023)
RCT
USA
(HIC)
  • Managing Cancer Care: A Caregiver’s Guide (MCC-CG) vs

  • Symptom Management toolkit

  • Given to: FC

  • TF: Self- and family management by Margaret Grey et al.

  • Becoming a caregiver

  • Managing cancer symptoms and side effects

  • Understanding care options and goals of care

  • Managing transitions

Healthcare professionals involved: Nurse
  • First meeting: 1-2 minutes to review the content of the module

  • The module was given to family caregivers to study and to be applied at home

  • Participants were evaluated after 3 months by phone

  • Media: Module

  • Delivery mode: Face to face

  • Duration: 3 months

  • Frequency: Not mention

Palliative care literacy
Shohani et al. (2018)
RCT
Iran
(LIC)
  • Palliative care training for 2 groups: face-to-face and tele nursing groups.

  • Given to: FC

  • TF: Not mention

  • Knowledge of cancer and chemotherapy

  • Managing side effects of chemotherapy

Healthcare professionals involved: Nurse
  • Education for face-to-face groups was given every 2 weeks

  • Education for telenursing was provided once a week (1 month) and every fortnight (month 2 and month 3)

  • Media: Booklet

  • Delivery mode: Both telenursing and face-to-face

  • Duration: 12 weeks

  • Frequency: Face-to-face (6 sessions: 20-25 mins/session) and telenursing (8 sessions: 15-20 mins/session)

Quality of care for family caregivers
Li, Ling, and Zhanyu (2019); Yanwei et al. (2018)
RCT
China
(HIC)
  • Wellness education for patients/caregivers with NSCLC treated with icotinib

  • Given to: Patient and FC

  • TF: Not mention

  • Knowledge of lung cancer, etc.

  • Physical activity & therapy

  • Coping, communication, & mental health education

  • Spirituality, Social needs, Nutrition

  • Symptoms & pain management

Healthcare professionals involved: Physicians and nurses
The sessions were conducted on 3 different days each week during treatment by a multidisciplinary team
  • Media: Not mention

  • Delivery mode: Face to face

  • Duration: 8 weeks

  • Frequency: 6 sessions for 45 mins

Quality of life and psychological variables for patients with non–small cell lung cancer stadium III and IV