Table 3.
Quality of HRQoL data for eligible participants (time to complete the whole survey, inconsistent responses, and internal consistency) by data collection type, and online panel sample type.
| Quality Variable | N (%) or Median (IQR) | |||||
|---|---|---|---|---|---|---|
| Survey | Sample Recruitment Pathway | Online Panel Sample Type | ||||
| Initial | Follow-Up | Hospital * | Online Panel | General Population ** | Condition Specific *** | |
| Extremely inconsistent response (+/− three levels) for similar items, n(%) | ||||||
| EQ-5D-Y-5L (pain)/CHU9D (pain) | 34 (0.6) | 52 (2.2) | 6 (0.8) | 28 (0.5) | 7 (0.5) | 21 (0.6) |
| EQ-5D-Y-5L (looking after self)/CHU9D (daily routine) | 90 (1.5) | 73 (3.1) | 20 (2.6) | 70 (1.4) | 4 (0.3) | 66 (1.8) |
| Very inconsistent response (+/− two levels) for similar items, n(%) | ||||||
| EQ-5D-Y-5L (pain)/CHU9D (pain) | 189 (3.2) | 95 (4.1) | 40 (5.3) | 149 (2.9) | 20 (1.3) | 129 (3.5) |
| EQ-5D-Y-5L (looking after self)/CHU9D (daily routine) | 407 (6.9) | 161 (6.9) | 67 (8.8) | 340 (6.6) | 31 (2.0) | 309 (8.5) |
Abbreviations: CHU9D—Child Health Utility; EQ-5D-Y—EQ-5D Youth. Note: excludes participants ineligible for failing minimum quality eligibility criteria and duplicate respondents. * Sample 1 (recruited via the hospital pathway), ** Sample 2 (general population sample recruited via the online pane pathway), *** Sample 3 (condition-specific samples recruited via the online panel pathway).