Table 4.
Time to complete instrument by survey, child age, report type, sample recruitment pathway, and sample type.
| Time to Complete Instrument in Seconds, Median (IQR) | ||||||||||
|---|---|---|---|---|---|---|---|---|---|---|
| Instrument | Survey | Child Age | Report Type | Sample Recruitment Pathway | Online Panel Sample Type | |||||
| Initial | Follow-Up | 5–12 years | 13–18 years | Self-Report | Proxy Report | Hospital * | Online Panel | General Population ** | Condition Specific *** | |
| PedsQL (23 items) | 96.7 (73.8, 133.5) | 90.3 (68.6, 123.4) | 96.5 (73.1, 135.8) | 97.1 (75.1, 129.5) | 96.2 (73.3, 137.6) | 97.5 (74.8, 127.1) | 125.6 (94.7, 186.4) | 93.6 (71.9, 126.5) | 90.9 (68.8, 126.7) | 94.9 (73.3, 126.3) |
| EQ-5D-Y-3L (including EQ VAS) (6 items) | 46.7 (34.4, 65.8) | 43.0 (31.1, 60.9) | 46.6 (35.1, 66.6) | 46.7 (35.1, 64.9) | 46.3 (34.1, 66.2) | 47.5 (35.3, 65.3) | 58.9 (43.2, 88.7) | 45.5 (33.5, 62.9) | 42.4 (30.9, 59.1) | 46.5 (34.6, 64.3) |
| EQ-5D-Y-5L (no EQ VAS) (5 items) | 29.0 (20.9, 41.8) | 27.7 (19.8, 40.8) | 29.1 (20.8, 42.4) | 28.7 (21.0, 41.2) | 29.1 (20.9, 42.4) | 28.9 (20.9, 40.4) | 36.6 (26.0, 55.4) | 28.1 (20.5, 40.1) | 25.3 (18.3, 36.3) | 29.4 (21.5, 41.4) |
| CHU9D (9 items) | 56.3 (41.5, 79.3) | 52.0 (38.4, 75.4) | 56.3 (41.1, 80.5) | 56.5 (42.5, 77.8) | 56.2 (41.4, 80.8) | 56.6 (41.8, 77.2) | 72.7 (53.1, 101.5) | 54.1 (40.3, 75.5) | 50.1 (37.1, 72.6) | 56.0 (42.0, 76.4) |
| AQoL-6D (20 items) | 147.2 (107.0, 208.2) | 132.9 (96.8, 190.6) | 146 (102.9, 205.1) | 151.6 (111.4, 215.1) | 141.6 (101.8, 201.9) | 157.9 (115.7, 215.5) | n/a | n/a | 135.9 (99.1, 183.7) | 152.5 (111.3, 217.8) |
| HUI 2/3 (15 items) | 112.4 (75.5, 167.2) | 94.1 (63.5, 144.8) | 109.5 (73.8, 163.7) | 117.7 (79.2, 173.5) | 111.9 (75.7, 163.5) | 113.6 (75.0, 171.8) | n/a | n/a | 96.5 (68.3, 147.4) | 120.0 (81.2, 173.1) |
| PROMIS-25 (25 items) | 98.7 (74, 133.2) | 93.3 (70.4, 133.6) | 96.8 (72.0, 131.4) | 100.7 (77.1, 134.4) | 94.5 (71.2, 128.8) | 106.1 (80.6, 140.8) | n/a | n/a | 94.8 (69.8, 128.1) | 100.1 (75.8, 135.3) |
Abbreviations: AQoL-6D—Assessment of Quality of Life; CHU9D—Child Health Utility; EQ-5D-Y—EQ-5D Youth; HUI2/3—Health Utilities Index Mark 2/3; n/a—not applicable; PedsQL—Paediatric Quality of Life Inventory; PROMIS-25—Patient-Reported Outcome Measurement Information System 25; VAS—visual analogue scale. * Sample 1 (recruited via the hospital pathway), ** Sample 2 (general population sample recruited via the online panel pathway), *** Sample 3 (condition-specific samples recruited via the online panel pathway).