TABLE 2.
Self-management components delivered in scientific studies (total, n=87)
| Self-management component | Description | Number of studies, n (%) |
| Patient education | Educational sessions covering various topics aimed at facilitating self-management | 68 (78) |
| Managing physical symptoms | Strategies and support to facilitate management of physical symptoms such as breathlessness and cough (including breathing techniques, relaxation, airway clearance, preventive measures and emergency procedures) | 57 (66) |
| Psychosocial support and coping strategies | Support and advice for managing psychosocial wellbeing (including peer support, psychological counselling and strategies for managing mood) | 47 (54) |
| Behavioural modification | Information and support to promote positive behavioural change (including diet, smoking or alcohol cessation, and physical activity) | 40 (46) |
| Managing disease and activities of daily living | Information and support to facilitate management of the disease and daily life activities (including energy conservation techniques, advice for appropriate aids/devices and accessing community resources) | 35 (40) |
| Managing pulmonary fibrosis-related treatments | Information and support to enhance the management of and adherence to both pharmacological and nonpharmacological treatments | 32 (37) |
| Understanding lung disease and clinical tests | Information to promote understanding of lung disease, disease progression, symptoms, prognosis, disease impact on daily life and the clinical tests involved | 32 (37) |
| Home exercise programme | Unsupervised home exercise programme or practices | 29 (33) |
| Understanding treatment options | Information to promote understanding of pharmacological and nonpharmacological treatment options | 21 (24) |
| Preventing infections and managing exacerbation | Information to facilitate early recognition of an exacerbation, strategies to prevent infections and action planning | 20 (23) |
| Self-monitoring | Monitoring of physical activity, symptoms and clinical parameters performed by people with pulmonary fibrosis | 19 (22) |
| Palliation and end-of-life planning | Palliative care and support to facilitate discussion and planning for end-of-life | 18 (21) |
| Goal setting | Support to facilitate setting care goals and patient decision making | 12 (14) |
| Managing comorbidities | Information and support to promote understanding and management of comorbidities (including incontinence, sleep disorders, pain and constipation) | 7 (8) |
| Sexuality and self-esteem | Information and support for maintaining body image and self-esteem | 6 (7) |