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. 2023 Oct 28;13(10):e071540. doi: 10.1136/bmjopen-2022-071540

Table 3.

Key metrics collected during baseline data collection

Primary metric Operational definition Collection method
BPG adherence The proportion of persons who have 80% of days covered. Each registrants’ days of coverage will be calculated as:
Days of coverage (%)=days with adequate BPG coverage/*/days prescribed BPG.
National Registry and ACT application, based on dates of injections as compared with prescription
Secondary metrics Operational definition Collection method
Retention Defined as being seen at least twice in a 12-month period for clinical review (outside or in conjunction with BPG delivery) National Registry and ACT application
Composite adverse CV events Combination of new or worsening heart failure, atrial fibrillation, infective endocarditis and/or recurrent ARF National Registry and ACT application, supplemented as needed by patient interview
RHD mortality Death of an RHD registrant that is determined to be the direct or indirect result of RHD Multimodality, direct report from family or hospital/clinic if death was witnessed by medical staff
BPG stockouts Number of days with no BPG or BPG-related supplies (needles, syringes, dilutant, lidocaine, etc) to be tracked individually, and number of days at <20% supply (based on anticipated number of RHD registrants assigned to that clinical location) ONLY tracked during decentralised care, through both stock inventory by our research staff (monthly surveillance) and reports on the ACT application

*Adequate BPG coverage defined as the prescribed interval between BPG injection (ie, 28, 21 or 14 days).

ACT, active community case management tool; BPG, benzathine penicillin G; CV, cardiovascular; RHD, rheumatic heart disease.