Table 3.

Questions from teenage SCD patients to adult patients

1	If you got the chance to change 3 things in your journey till your mature age, what would you’ve changed?
2	Will I be able to live normal like other kids and be strong to do anything like other normal kids?
3	Will I be on medication throughout my lifetime even if I oft for bone marrow transplantations
4	How does it affect relationships?
5	When I’m older can I still enjoy fun activities with my friends? I want to get piercing but I’m always told not to and I feel like I’m missing out
6	Does the sickle cell disease go at a certain age or not?
7	What are the health challenges on older people in these different areas: Employment, sex, hospitalisation, vacation by air?