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. Author manuscript; available in PMC: 2023 Nov 2.
Published in final edited form as: Dystonia. 2023 Jun 8;2:11305. doi: 10.3389/dyst.2023.11305

TABLE 1.

Demographic and clinical characteristics of study population as reported to Dystonia Coalition.

Category Participants (% total)
Gender Female 1,146 (70.8%)
Male 472 (29.2%)
Race White 1,450 (89.6%)
Non-white 153 (9.5%)
Not reported/Unknown 15 (0.9%)
Handedness Right 1,404 (86.8%)
Left 155 (9.6%)
Ambidextrous 54 (3.3%)
Unknown 5 (0.3%)
Age at visit (years) 60.2 ± 13.0
Age at onset (years) 45.1 ± 16.8
Disease duration (years) 15.0 ± 13.0
BFM Total 11.1 ± 9.5
GDRS Total 12.6 ± 10.3

BFM: Burke-Fahn-Marsden Dystonia Rating Scale. GDRS, Global Dystonia Rating Scale. Relevant values reported in mean ± standard deviation.