Table 1.

Participant Demographics and Quality of Life Scores.

pwPPA							Proxy				Quality of Life		Relationship
Dyad #	Age	Gender	Variant	Time since onset	Self-Rated QOL	ACE-III Score	Age	Gender	Proxy-Rated QOL	CBI Proxy Rating	QOL Difference (SR-PR)	QOL Mean	Relationship	Length of Relationship
1	73	Male	NonFluent	48	34	93	72	Female	44	24	−10	39	Spouse	58
2	73	Male	NonFluent	21	37	95	73	Female	44	20	−7	40.5	Spouse	12
3	79	Male	NonFluent a	60	26	74	70	Male	31.4	45	−5.4	26.5	Brother	70
4	81	Male	NonFluent	24	45	89	78	Female	47	8	−2	46	Spouse	57
5	73	Male	NonFluent	42	37	77	70	Female	39	57	−2	38	Spouse	49
6	77	Male	Logopenic	36	34	36	64	Female	36	68	−2	35	Spouse	28
7	79	Male	NonFluent	60	37	90	75	Female	38	0	−1	37.5	Spouse	38
8	77	Male	Logopenic	30	25	90	71	Female	25	61	0	25	Spouse	46
9	71	Male	Semantic	66	37	43	62	Female	37	79	0	37	Spouse	9
10	55	Female	Semantic	60	37	90	68	Female	37	18	0	37	Friend	36
11	66	Male	Logopenic	44	43	69	62	Female	42	20	1	42.5	Spouse	40
12	68	Male	NonFluent	48	33	19	71	Female	31	54	2	32	Spouse	36
13	69	Female	Logopenic	17	40	31	70	Female	32	64	8	36	Spouse	“long time”
14	77	Female	NonFluent	24	46.6	94	49	Female	37.9	24	8.7	42.25	Daughter	49
15	79	Female	NonFluent	24	45	61	86	Male	36	50	9	40.5	Spouse	57
16	60	Female	Mixed	18	45	60	61	Male	36	46	9	40.5	Spouse	41
17	60	Male	Semantic	30	49	60	55	Female	35	49	14	42	Spouse	26
18	64	Female	Logopenic	14	47.7	81	25	Female	32.5	33	15.2	40.1	Daughter	25

^aThe person with PPA, their family and regular speech pathologist reported the patient was diagnosed only with “PPA”. Based on the language assessment, our team determined that the profile was most consistent with a working diagnosis of non-fluent variant PPA.

^bSpouse – refers to either a married or long term unmarried, live-in partner.

CBI-R - Cambridge Behavioural Inventory (Revised edition). ²⁷ Scores are out of 180 and higher scores indicate a greater number of abnormal neuro-psychiatric or behavioral symptoms.

ACE-III - Addenbrooke’s Cognitive Examination third edition. ²⁶ A cognitive screening test suitable for people with PPA. Scores are out of 100 and higher scores indicate better cognitive function.