Table 4.
Age of caregiver (years) | |
Mean (SD) | 70.3 (9.6) |
Duration of caregiving (years) | |
Mean (SD) | 6.6 (9.0) |
Gender of caregiver (%) | |
Male | 28 (24.1) |
Female | 88 (75.9) |
Country (%) | |
UK | 41 (35.3) |
Germany | 12 (10.3) |
Italy | 13 (11.2) |
Spain | 11 (9.5) |
US | 39 (33.6) |
Perceived general health of caregiver (%) | |
Excellent/very good | 13 (11.2) |
Good/fair | 86 (74.1) |
Poor | 15 (12.9) |
Missing | 2 (1.7) |
Is the patient confused? (%) | |
Yes, all of the time | 29 (25.0) |
Yes, most of the time | 44 (37.9) |
Yes, sometimes | 39 (33.6) |
No | 4 (3.4) |
Is it possible to leave the patient alone? (%) | |
Yes, as long as I need | 24 (20.7) |
Yes, a short time | 45 (38.8) |
No | 46 (39.7) |
Missing | 1 (0.9) |
Does the patient wander around house? (%) | |
Yes | 63 (54.3) |
No | 51 (44.0) |
Missing | 2 (1.7) |
Does the patient recognize you? (%) | |
Yes, all the time | 61 (52.6) |
Yes, most of the time | 32 (27.6) |
Yes, sometimes | 14 (12.1) |
No, never | 9 (7.8) |
Is the patient incontinent? (%) | |
Yes, all the time | 34 (29.3) |
Yes, during the day | 16 (13.8) |
Yes, only at night | 8 (6.9) |
No | 54 (46.6) |
Missing | 4 (3.4) |
Comparator questionnaires | Median (IQR) |
GWBI | 64.0 (57.0–77.0) |
NHP | |
Energy level | 33.3 (0.0–66.7) |
Pain | 0.0 (0.0–34.4) |
Sleep | 20.0 (0.0–80.0) |
Emotional reactions | 33.3 (11.1–55.6) |
Social isolation | 20.0 (0.0–40.0) |
Physical mobility | 64.0 (0.0–25.0) |
IQR = Inter Quartile Range, GWBI = General Well-Being Index, NHP = Nottingham Health Profile.