Table 1.

Experiences of Living With PPA From the Perspective of Individuals With the Disorder.

Author(s) (Location)	Qualitative Study Aim(s)	Research Methodology/Qualitative Data Collection Method(s)/Qualitative Data Analysis Method(s)	Participant(s)	Key Qualitative Findings Related to the Scoping Review Question
Bier et al 20 (Canada)	To document day-to-day compensation strategies, including the use of a smartphone, of a man with svPPA	Mixed methods/semi-structured interview, based on the Canadian Model of Occupational Performance 21 /results extracted from the interview transcript	56-year-old male with svPPA (3-4 years postdiagnosis)	“[The participant] proactively used different strategies to overcome his semantic difficulties and, apart from ARCUS [a smartphone application], he spontaneously found those strategies himself”(p. 740). These strategies included: “…always buying the same items and going to the same four grocery stores [when grocery shopping]…(p739); “To communicate with others, he mostly used e-mails since it gave him enough time to understand what he was writing or reading”(p740)
Kindell et al 22 (United Kingdom)	To examine the everyday conversation, at home, of an individual with svPPA	Conversation analysis/6 video-recordings of natural conversation in the home without the researcher present, and natural conversation between the individual and the researcher; Carer interview from the Conversation Analysis Profile in Cognitive Impairment 23 /Conversation analysis	71-year-old male with svPPA (4-5 years post-diagnosis), his 71-year-old wife, and their adult son	“A recurrent and striking feature of Doug’s behaviour in conversation was his tendency to rely on enactment; he would regularly depict, or perform, his or others’ talk or thoughts, using direct reported speech, prosody and body movement as a form of communication”(p500)
Morhardt et al 24 (United States)	To explore the impact of a talk-based psycho-educational support program on individuals experiencing a progressive loss of language and on their care partnersa	Not specified/pilot group: Observational field-notes; Formal group: Observational field-notes; Audio-recordings of 2 group sessions/thematic analysis	Pilot group: 2 females and 4 males with PPA (subtypes unspecified; time post-diagnosis unspecified; all individuals in early-moderate stage); aged 53-80 years; mean = 67.5 years. Formal group: 4 females and 5 males with PPA (including 5 individuals from the pilot group) and 8 family members (subtypes unspecified; time post-diagnosis unspecified); aged 55-82 years; mean = 67.2 years	Themes: (1) Coping with limitations and language decline—“Participants expressed frustration and sadness surrounding the loss of language abilities”(p6); (2) Dealing with increased dependency—“There were mixed feelings regarding the increased dependency on others, particularly family members”(p6); (3) Expressing resilience and making adaptations—“There was generous enthusiasm and sharing of helpful compensation strategies with other group members”(p7); (4) Experiencing stigma (Pilot group) and confronting stigma (Intervention group) “The group members used the group to discuss the challenges associated with communicating their changing needs and the experience of PPA to others”(p6); (5) Experiencing self-confidence—“Rather than being inhibited by it [confronting stigma], there was an overall expression of self-efficacy and appreciation for the opportunity the group provided to engage in a social situation; however, challenging”(p14); (6) Feeling a sense of belonging—“Participants would ask each other if they were experiencing similar symptoms and were comforted to know that they were not alone”(p7)

Abbreviations: PPA, primary progressive aphasia; svPPA, semantic variant PPA.

^a Qualitative results reported in the study only related to the experiences of individuals with PPA.