Table 3.

Qualitative categories/themes and details from interviews across app development phases

Category/Theme	Proportion of Interviews	Details from interviews
Phase 1: Alpha testing (parents and clinicians)
USABILITY: Lab values/ measurements not intuitively displayed	64%	- Need the labs to display the same way doctors and nurses talk about them (parent) - Add options to allow conversion to metric units for height (centimeters), weight (kilograms), and temperature (Celsius) (clinician)
USABILITY: Emergency information not immediately apparent	48%	- It would be nice to have the healthcare team emergency contact information front and center (parent) - It would be helpful to have a big red button that you use when you need to call (parent) - Move the navigation buttons to the bottom of screen, with an emphasis on the ‘emergency call’ button (parent)
USABILITY: Need for improved appointment tracker functionality	44%	- You need to be able to scroll to set appointment date/time (parent) - The appointment should save to my regular calendar (parent)
USABILITY: Need for expanded storage area for contact information	36%	- A lot of times someone (like the social worker) will just hand me a card – and do you think I can find that card again? No, I can’t! (parent) - It would be helpful to have a place to keep the pharmacist’s phone number (parent)
CONTENT EXPANSION: Inclusion of EMR data	20%	- It would be great if there could be a medication list in the app (clinician, parent) - Could the labs from the electronic medical record be integrated into the app? (parent)
CONTENT EXPANSION: Inclusion of disease-specific information	12%	- You could incorporate links from cancer.gov for specific diseases, like Hodgkin lymphoma (clinician)
ACCESSIBILITY: Language, tutorial	12%	- Will any of this be available in Spanish? (clinician) - Is there a walk-through or orientation for the parent the first time they run it, like ‘Welcome to this App’? (clinician)
Phase 1: Beta testing (parents and clinicians)
USABILITY: Re-organization of content	50%	- It would be helpful to organize the information according to time…information you need in the beginning, and then as time goes by (parent) - I think it is very logical, very intuitive (clinician)
USABILITY: Improve search bar functionality	20%	- Adjust search so that all informational content within the app is searched, and search results are labeled with the name of the section and sub-section in which the searched-for information has been located (clinician)
CONTENT EXPANSION: COG New Diagnosis Guide and Family Handbook	10%	- Include all of the information from the Children’s Oncology Group Family Handbook (parent) - Add information from the Children’s Oncology Group New Diagnosis Guide and Family Handbook (clinician)
Phase 2: Pilot testing (parents only)
USABILITY: Ease of access to/ availability of information via app	100%	“It is the same information [as the written materials], it was just easier to find…going through the app was less time consuming. Easier to find the information.”
		“I like the app because if you are somewhere…and you’re not with your big binder or your stuff at home…and something happens, you can just look it up on your phone.”
		“I love the emergency room card…I found it very helpful, the fact that it is right there, convenient.”
		“You can click and scroll instead of frantically flipping through pages and trying to find it – it is right there, convenient.”
		“I think it is real easy to use. It actually gave me a reminder last night to come here [to clinic] today…it was very helpful.”
		“Nowadays I have everything on my phone, so it is just so much nicer to have it there…I would prefer the app to the paper.”
ACCESSIBILITY: Similarity between app and written materials	65%	“I found [the app and the binder] very similar. I wouldn’t say that there is one better than the other. I mean, I like physical paper but at the same time, driving down the road and thinking of something, the app is better when you don’t have the physical paper in front of you.”
ACCESSIBILITY: Preference for written materials over app	6%	“When it comes to the information that was in the binders, I liked that I could read, highlight, take notes on what the information was…I feel like this information is so important it deserves a book.”