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. 2023 May 20;46(12):2513–2523. doi: 10.1007/s40618-023-02106-3

Table 4.

Results of QoLISSY parent

Perspective Domains Total (n = 142) Male 4–7 years (n = 7) Female 4–7 years (n = 3) Male 8–12 years (n = 35) Female 8–12 years (n = 27) Male 13–18 years (n = 56) Female 13–18 years (n = 14)
Mean (SD) Ref
p
Mean (SD) Ref
p
Mean (SD) Ref
p
Mean (SD) Ref
p
Mean (SD) Ref
p
Mean (SD) Ref
p
Mean (SD) Ref
p
Parents Physical 78.40 (20.80)

71.80

p = 0.0038

63.69 (26.54)

66.41

p = 0.80

80.56 (9.62)

68.48

p = 0.16

78.21 (18.75)

67.83

p = 0.002

74.54 (27.06)

64.21

p = 0.058

81.77 (17.92)

79.16

p = 0.28

79.76 (20.34)

77.93

p = 0.74

Social 71.68 (24.61)

69.41

p = 0.37

62.05 (22.92)

66.47

p = 0.63

79.17 (19.09)

69.89

p = 0.49

73.48 (20.51)

66.93

p = 0.07

71.30 (29.42)

59.16

p = 0.042

73.21 (23.54)

75.59

p = 0.45

64.96 (31.06)

75.12

p = 0.24

Emotional 68.57 (22.00)

68.50

p = 0.98

65.63 (25.32)

69.92

p = 0.67

77.08 (13.01)

76.39

p = 0.94

71.16 (17.94)

67.92

p = 0.29

65.86 (27.72)

63.16

p = 0.62

69.53 (21.71)

68.32

p = 0.68

63.17 (21.52)

70.87

p = 0.20

Coping 42.98 (23.59)

45.07

p = 0.35

43.21 (17.18)

38.48

p = 0.49

35.83 (12.83)

47.54

p = 0.25

40.07 (17.44)

44.33

p = 0.16

46.57 (25.72)

44.24

p = 0.64

42.54 (25.38)

46.59

p = 0.24

46.43 (30.88)

47.73

p = 0.88

Beliefs 66.81 (27.76)

67.62

p = 0.78

70.54 (32.62)

69.96

p = 0.96

77.08 (21.95)

77.50

p = 0.98

68.57 (24.51)

62.97

p = 0.19

62.27 (32.27)

66.78

p = 0.47

67.86 (26.47)

65.70

p = 0.54

62.95 (32.75)

72.29

p = 0.31

Treatment 48.29 (18.15)

55.18

p = 0.0023

43.37 (15.07)

60.53

p = 0.024

52.38 (16.97)

45.18

p = 0.54

47.04 (17.94)

55.71

p = 0.007

46.63 (18.59)

48.15

p = 0.67

51.02 (19.44)

65.95

p < 0.0001

45.28 (14.95)

58.52

p = 0.006

Future 79.44 (24.36)

74.85

p = 0.081

77.14 (31.87)

79.27

p = 0.87

81.67 (11.55)

86.47

p = 0.55

79.43 (23.76)

69.62

p = 0.020

82.22 (25.01)

67.96

p = 0.006

79.55 (23.16)

75.65

p = 0.21

74.29 (29.99)

80.79

p = 0.43

Effect on parents 62.15 (24.24)

65.68

p = 0.15

44.81 (21.39)

62.01

p = 0.078

75.76 (11.21)

63.50

p = 0.20

59.09 (23.18)

57.90

p = 0.76

63.47 (24.57)

63.44

p = 1.00

66.03 (24.88)

70.98

p = 0.14

57.47 (24.26)

73.00

p = 0.032

Total (P + S + E) 72.38 (20.51)

69.97

p = 0.27

63.80 (20.43)

67.60

p = 0.64

78.79 (9.19)

71.77

p = 0.32

73.93 (16.88)

67.80

p = 0.039

70.20 (26.59)

62.18

p = 0.13

74.21 (19.29)

74.36

p = 0.95

68.34 (22.95)

74.64

p = 0.32

Values in bold are statistically significant