Skip to main content
. 2023 Aug 25;11(9):852–860. doi: 10.1002/ueg2.12452

TABLE 1.

Baseline characteristics of patients with Wilson's disease and matched general population reference individuals.

Wilson's disease (N = 151) Reference individuals (N = 1441) p Wilson's disease patients born in Sweden (N = 102) Wilson's disease patients born outside Sweden (N = 49) p
Follow‐up (years) 6.57 (2.88–12.90) 7.54 (3.83–13.64) 0.08 6.71 (3.30–12.77) 6.06 (1.75–13.79) 0.31
Men 76 (50.3%) 728 (50.5%) 0.96 48 (47.1%) 28 (57.1%) 0.25
Age at baseline, years 26 (17–42) 26 (17–41) 0.72 27 (16–44) 26 (19–34) 0.68
<10 14 (9.3%) 139 (9.6%) 13 (12.7%) 1 (2.0%)
10–19 36 (23.8%) 356 (24.7%) 23 (22.5%) 13 (26.5%)
20–29 35 (23.2%) 338 (23.5%) 17 (16.7%) 18 (36.7%)
30–39 23 (15.2%) 212 (14.7%) 14 (13.7%) 9 (18.4%)
40–49 19 (12.6%) 175 (12.1%) 16 (15.7%) 3 (6.1%)
50 + 24 (15.9%) 221 (15.3%) 19 (18.6%) 5 (10.2%)
Period of inclusion 1.00 0.71
2002–2005 27 (17.9%) 256 (17.8%) 20 (19.6%) 7 (14.3%)
2006–2010 36 (23.8%) 337 (23.4%) 22 (21.6%) 14 (28.6%)
2011–2015 35 (23.2%) 328 (22.8%) 23 (22.5%) 12 (24.5%)
2016–2020 53 (35.1%) 520 (36.1%) 37 (36.3%) 16 (32.7%)
Country of birth <0.001 <0.001
Nordic countries 104 (68.9%) 1286 (89.2%) 102 (100%) 2 (4.1%)
Europe (non‐Nordic) 12 (7.9%) 33 (2.3%) 0 12 (24.5%)
Other 35 (23.2%) 122 (8.5%) 0 35 (71.4%)
Education 0.52
<9 years 24 (15.9%) 205 (14.2%) 18 (17.6%) 6 (12.2%) 0.01
9–12 years 57 (37.7%) 618 (42.9%) 44 (43.1%) 13 (26.5%)
>12 years 49 (32.5%) 438 (30.4%) 24 (23.5%) 25 (51.0%)
Missing 21 (13.9%) 180 (12.5%) 16 (15.7%) 5 (10.2%)
Neurologic diagnosis before or at baseline 26 (17.2%) 94 (6.5%) <0.001 17 (16.7%) 9 (18.4%) 0.80
Psychiatric diagnosis before or at baseline 36 (23.8%) 144 (10.0%) <0.001 37 (36.3%) 17 (34.7%) 0.90

Note: Results are presented as n (%) or median (IQR).