Table 2.
Measures.
| Variable(s) | Measure(s) | Person Assessed | Response Range |
|---|---|---|---|
| Health related quality of life | |||
| Physical activity | Number of days of aerobic activity of at least 30 min per week | CR & CP | 0–7 |
| Chronic conditions/diseases | 15-item measure of different health conditions. | CR & CP | Yes/no |
| Memory, depression, and behavior disturbances | 24-item Revised Memory and Behavior Problem Checklist (RMBPC) [25] | CR | 4-point scale: none to daily or more often |
| Depressive symptomology | 10-item (mean score), Center for Epidemiological Studies-Depression scale (CESD-10) [44] | CP | 5-point scale: less than once a week or never to everyday |
| Activity limitations | 10-item (mean score), physical functioning subscale of the Medical Outcomes Study 36-Item Short Form (SF-36) [45] | CR & CP | Yes/no |
| Quality of life | 13-item Quality of Life in Alzheimer’s Disease (QOL – AD) [46] | CR | 4-point scale: poor to excellent |
| Social connectedness | |||
| Relationship status | Single item | CR & CP | Partnered, married, divorced, widowed, separated, never married, or never partnered |
| Social Support | 4-item (mean score), brief MOS-Social Support Scale [47] | CR & CP | 5-point scale: never to very often |
| SGM community engagement | 3-item questionnaire regarding SGM community knowledge and resources | CP | 4-point scale: strongly disagree to agree |
| Social Isolation | 3-item (mean score) UCLA Loneliness Scale [48] | CP | 4-point scale: never to often |
| Caregiving | |||
| Relationship between CR/CP | Single item question about relationship between CR/CP | CP | Partner/spouse, friend, parent or parent-in-law, child, grandchild, other relative, other relationship |
| Caregiving efficiency | 3-items, assessing competency in problem solving and support seeking | CP | 4-point scale: strongly disagree to agree |
| Minority stress | |||
| Perceived stress | 4-item (mean score) Brief Perceived Stress Scale [49] | CP | 5-point scale: never to very often |
| Adverse experiences | 6-item (mean score), SGM Microaggressions assessing frequency of external stigma based on perceived SGM identity | CP | 5-point scale: never to very often. |
| Background characteristics at baseline | |||
| Age | Single item | CR & CP | Month, day, year Female, male, not listed |
| Sex assigned at birth | Single item | CR & CP | Woman, man, not |
| Gender identity | Single item question about gender identity | CR & CP | Woman, man, not listed (gender diverse) |
| Transgender identity | Single item question about transgender identity | CR & CP | Yes/no |
| Sexual orientation | Single item question about sexual orientation | CR & CP | Gay or lesbian, bisexual, straight, not listed (sexually diverse) |
| Race | Single item question about race | CR & CP | White, Black or African American, Asian, Native Hawaiian or Other Pacific Islander, American Indian, Alaska Native, Other |
| Ethnicity | Single item question about ethnicity | CR & CP | Yes/no |
| Language(s) spoken | Single item | CR & CP | Yes/no |
| Educational level | Single item question | CR & CP | No high school, some high school, high school graduate or equivalent, some college, college degree, some graduate, graduate degree, vocational/technical certificate |
| Employment status | Single item question about employment | CR & CP | Yes/no |
| Military/veteran status | Single item question about military status | CR & CP | Yes/no |
| Cognitive functioning | Mini-Mental State Exam (MMSE) [43] | CR | Open ended responses |