Table 2.
Moderate-to-high unmet needs reported by carers for pancreatic cancer patients.
| Rank | Need Item | Domain | Mod–High Need | |
|---|---|---|---|---|
| n | % | |||
| 1 | Accessing information about what the person with cancer’s physical needs are | Information | 31 | 39 |
| 2 | Having opportunities to discuss your concerns with doctors | Healthcare | 29 | 36 |
| 3 | Finding more accessible hospital parking | Other | 29 | 36 |
| 4 | Addressing fears about the person with cancer’s deterioration | Healthcare | 28 | 35 |
| 5 | Accessing information about the benefits and side-effects of treatments | Information | 27 | 34 |
| 6 | Being involved in the person with cancer’s care, together with a medical team | Healthcare | 26 | 32 |
| 7 | Finding out about financial support and government benefits | Information | 26 | 32 |
| 8 | Accessing information about the person with cancer’s prognosis | Information | 24 | 30 |
| 9 | Ensuring that there is an ongoing case manager to coordinate services | Healthcare | 23 | 29 |
| 10 | Obtaining the best medical care for the person with cancer | Healthcare | 22 | 28 |
| 11 | Balancing the needs of the person with cancer and your own needs | Psychological | 22 | 27 |
| 12 | Accessing information relevant to your needs as a carer/partner | Information | 20 | 26 |
| 13 | Feeling confident that all the doctors are talking to each other | Healthcare | 21 | 26 |
| 14 | The impact that caring for the person with cancer has had on your working life, or usual activities | Work/social | 20 | 25 |
| 15 | Accessing information about support services for carers/partners | Information | 19 | 24 |
| 16 | Adapting to changes in the person with cancer’s working life or usual activities | Work/social | 19 | 24 |
| 17 | Accessing local health care services when needed | Healthcare | 19 | 23 |
| 18 | Understanding the experience of the person with cancer | Psychological | 19 | 23 |
| 19 | Making decisions about your life in the context of uncertainty | Psychological | 18 | 23 |
| 20 | Finding meaning in the person with cancer’s illness | Psychological | 18 | 23 |
| 21 | Making sure that complaints regarding the person with cancer’s care are properly addressed | Healthcare | 18 | 22 |
| 22 | Obtaining adequate pain control for the person with cancer | Healthcare | 17 | 21 |
| 23 | Accessing information about alternative therapies | Information | 15 | 19 |
| 24 | Working through your feelings about death and dying | Psychological | 15 | 19 |
| 25 | Dealing with others not acknowledging the impact caring has on your life | Psychological | 15 | 19 |
| 26 | Adjusting to changes in the person with cancer’s body | Psychological | 14 | 18 |
| 27 | Looking after your own health, including eating and sleeping properly | Healthcare | 14 | 17 |
| 28 | Obtaining emotional support for your loved ones | Psychological | 13 | 16 |
| 29 | Communicating with family | Work/social | 12 | 15 |
| 30 | Managing concerns about the cancer returning | Psychological | 12 | 15 |
| 31 | Obtaining emotional support for yourself | Psychological | 12 | 15 |
| 32 | Coping with the person with cancer’s recovery not turning out the way you expected | Psychological | 12 | 15 |
| 33 | The impact cancer has had on your relationship with the person with cancer | Psychological | 11 | 14 |
| 34 | Exploring your spiritual beliefs | Psychological | 10 | 13 |
| 35 | Having opportunities to participate in making decisions about treatment | Information | 9 | 12 |
| 36 | Communicating with the person you are caring for | Work/social | 9 | 11 |
| 37 | Receiving more support from your family | Work/social | 8 | 10 |
| 38 | Talking to other people who have cared for someone with cancer | Work/social | 8 | 10 |
| 39 | Caring for the person with cancer on a practical level, such as with bathing, changing dressings, or giving medications | Other | 6 | 7 |
| 40 | Obtaining life and/or travel insurance for the person with cancer | Other | 5 | 6 |
| 41 | Accessing legal services | Other | 5 | 6 |
| 42 | Addressing problems with your sex life | Psychological | 5 | 6 |
| 43 | Handling the topic of cancer in social situations or at work | Work/social | 3 | 4 |
| 44 | Accessing information about potential fertility problems in the person with cancer | Other | 2 | 3 |