Table 1.

Demographic and Health Characteristics of Women with Congenital Heart Defects, by Disability Status, CH STRONG, 2016–2019

Characteristic levels	≥1 disability		No disability		Chi-Square
	N	Percent	N	Percent	p-value
Total	323		455
Age at survey completion
19–24	137	42.4	181	39.8	0.52
25–30	136	42.1	190	41.8
31–38	50	15.5	84	18.5
CHD severity
Nonsevere	214	66.3	343	75.4	0.005
Severe	109	33.7	112	24.6
Race/ethnicity
Hispanic	39	12.1	36	7.9	0.04
Multi/other	23	7.1	30	6.6
NH black	62	19.2	67	14.7
NH white	199	61.6	322	70.8
Presence of chromosomal anomalies
No	262	81.1	445	97.8	<0.001
Yes	61	18.9	10	2.2
Place of birth
Arizona	106	32.8	92	20.2	<0.001
Arkansas	129	39.9	188	41.3
Georgia	88	27.2	175	38.5
Education
<High school	38	11.8	12	2.6	<0.001
High school or equivalent	136	42.1	68	14.9
>High school	149	46.1	375	82.4
Insurance type
Any private	122	37.8	293	64.4	<0.001
Other, none, or unsure	71	22	114	25.1
Public	130	40.2	48	10.5
Receipt of health care in last 12 months
No	39	12.1	67	14.7	0.29
Yes	284	87.9	388	85.3
Most recent cardiology care
≤2 years	177	54.8	180	39.6	<0.001
3–5 years	32	9.9	48	10.5
>5 years or never	114	35.3	227	49.9
Proxy report
Yes	97	30	21	4.6	<0.001
No	226	70	434	95.4

CH STRONG, congenital heart survey to recognize outcomes, needs, and well-beinG; CHD, congenital heart defects.