Table 3.
Descriptive statistics and proportion of sample with clinically elevated scores on self-reported questionnaires for participants and carer-reported measures with 95% confidence intervals. Cut scores used were taken from each scales’ published psychometric analysis were used to indicate percent of participants with elevated symptoms or scores warranting clinical attention (termed “clinically significant” within the table)
| Domain | N | Mean (SD) | Clinically Significant –N (% [95% CI]) |
|---|---|---|---|
| Post-Stroke Abilities | |||
| Modified Rankin Scale Scorea | 100 | 1.79 (1.27) | 30 (28.6 [19.7 – 37.4]) |
| Barthel-3 Item Short Form Totala | 99 | 6.93 (1.58) | – |
| Nottingham Extended ADLa | 100 | 47.77 (16.26) | – |
| Quality of Life | |||
| SIS-Short Form Scaled Total1a | 102 | 72.66 (20.12) | – |
| SIS-Long Form Stroke Recovery Scoreb | 88 | 71.91 (21.63) | – |
| WHO-QoL–BREF Overall Scoreb | 83 | 7.22 (1.65) | – |
| ICECAP-A Totala | 101 | 15.65 (2.90) | – |
| EQ5D-5L Health Ratinga | 99 | 68.61 (18.83) | – |
| Cognitive Ability | |||
| CFQ Totalb | 88 | 33.60 (17.93) | 29 (32.2 [22.5 – 41.9]) |
| Cognitive Reserve Indexb | 84 | 128.42 (19.68) | – |
| Emotional Distress | |||
| HADS-Depression Totala | 98 | 4.97 (3.98) | 23 (23.5 [15.1 – 31.9]) |
| HADS-Anxiety Totala | 98 | 5.23 (4.02) | 22 (22.5 [14.2 – 30.7]) |
| GDS Totala | 101 | 4.22 (4.10) | 34 (33.7 [24.4 – 42.9]) |
| Extended Outcomes | |||
| Apathy Evaluation Scalea | 101 | 32.36 (10.21) | 41 (40.6 [31.0 – 50.2]) |
| Fatigue Severity Scalea | 101 | 35.56 (15.34) | 52 (51.5 [41.7 – 61.2]) |
| Sleep Condition Indicatora | 100 | 23.29 (8.04) | 21 (21.0 [13.0 – 28.9]) |
| Carer Measures | |||
| CSI Total Scorea | 68 | 2.76 (3.12) | 9 (13.2 [5.2 – 21.2]) |
| Informant-GDS Totala | 70 | 5.18 (4.30) | 35 (50.0 [38.2 – 61.7]) |
| IQ-CODEa | 74 | 3.23 (0.63) | 29 (39.2 [28.1 – 50.3]) |
SIS Stroke Impact Scale, WHO-QoL-BREF World Health Organization Quality of Life Scale – Abbreviated, ADL Activities of Daily Living, ICECAP-A ICEpop Capability Measure for Adults, EQ5D-5L EuroQol-5 Dimensions-5 Levels, CFQ Cognitive Failures Questionnaire, HADS Hospital Anxiety and Depression Scale, GDS Geriatric Depression Scale, CSI Caregiver Strain Index, IQ-CODE Informant Questionnaire for Cognitive Decline in the Elderly
aData presented from Wave 1
bData presented from Wave 2