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. Author manuscript; available in PMC: 2023 Nov 30.
Published in final edited form as: Dementia (London). 2023 Sep 1;22(8):1695–1717. doi: 10.1177/14713012231193139

Table 1.

Participant Descriptive Statistics

Description PWD* n (%) CG* n (%)
N 24 37
Gender
 Female

8 (33%)

27 (73%)
Age
 30-39
 40-49
 50-59
 60-69
 70-79
 80-89

NA
NA
NA
5 (21)
15 (63)
4 (16)

0
4 (11)
5 (14)
17 (46)
9 (24)
2 (5)
Ethnicity
 Hispanic
 Not Hispanic
 Unknown

0
24 (100)
0

5 (14)
32 (86)
0
Race
 Asian
 Black / African American
 Mixed Race / Other
 White

1 (4)
1 (4)
1 (4)
21 (88)

3 (8)
5 (14)
5 (14)
24 (64)
Education
 Highschool diploma
 Some college but no degree
 Associates degree
 Bachelor’s degree
 Graduate degree

2 (13)
2 (8)
12 (50)
7 (29)
0 (0)

3 (8)
5 (14)
4 (11)
10 (27)
15 (40)
Average Household income (yearly)
 $0-24,999
 $25,000-49,000
 $50,000-74,999
 $75,000-99,999
 $100,000-124,999
 $125,000 and up
 Prefer not to answer

1 (4)
3 (12.5)
6 (25)
3 (12.5)
3 (12.5)
4 (17)
4 (17)

0 (0)
7 (19)
7 (19)
7 (19)
1 (3)
10 (27)
5 (13)
Level of dementia severity (DSRS)
 MCI (by dx)
 Mild (0-18)
 Moderate (19-36)**
 Severe (37-54)** [via CG interview]

7
12
5
0



10**
3**
*

PWD indicates persons with dementia; CG indicates caregivers. These abbreviations are used in tables and references to excerpts throughout the text.

**

A subset of 13 interviewed caregivers reported DSRS scores for PWD who were not interviewed. 10 CG reported moderate dementia in non-interviewed PWD. 3 CG reported severe dementia in non-interviewed PWD.