Table 4.
Themes and example quotes from exit interviews with PWDs
| Coaching: Helped PWD set realistic achievable goals while enhancing accountability and support |
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| Helped set realistic and achievable goals in ways not previously experienced: |
| "I had a lot of goals and didn’t know where to start... The coaching really helped me sort out my goals and find realistic ones and just feel like 1 had a support system." |
| "I've never actually set so many goals with my endocrinologist...it was cool to have those coaching sessions and...have like a goal to work towards." |
| Enhanced accountability and problem-solving: |
| "You knew you had someone that you needed to report back to. It made me much more cognizant of when things were helpful and when they weren’t." |
| "Just being able to talk just about situations and problems that I'm having related to diabetes. Being able to find necessary yet, I guess compromisable ways to approach it that will be achievable." |
| Increased support: |
| "I loved how supportive [the coach] was with my goals... very uplifting and supportive of where I was at." |
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| Text messages to PWD: Provided reminders, accountability, and motivation to make diabetes goals a priority |
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| Reminder to prioritize diabetes goal: |
| “Having a daily text forces you to have it on your mind more often, and it just becomes a habit." |
| "I used them more as like a reminder. I wanted them sent around lunch...my goal was to dose and check my blood sugar at lunch time." |
| Automated texts were supportive and motivating: |
| "They never felt pushy or negative...it was like 100% supportive." |
| "Just the kind of constant like motivation...you got this...keep on your goal." |
| End of day texts held PWD accountable to diabetes goal: |
| "I knew I was going to be asked if I met the goal and that motivated me to actually meet the goal." |
| "Accountability at the end of the day. Like...did you do [your goal?]... I was kind of like oh, why didn’t I do it? This came up, this came up. How can I prevent that from happening?" |
| Texts from coach were personal and supportive: "I really liked that...I wasn’t just getting messages from an automated thing" "Reminder [that] I do have support. There are people wanting to help me and I'm capable of doing it" |
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| FAMS-T1D increased openness to disclosing diabetes needs to family and friends and soliciting help |
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| More open to disclosing and receiving help: |
| "It helped me realize they're interested in helping me with it. It’s not like this big, scary thing that I have to be embarrassed about talking to people." |
| "I was more confident and willing to reach out to people and more open about it." |
| Engaged with others in new ways: |
| "In the past I would just ignore [annoying comments]. Over the past 3 months, I've been proactive about...explaining why what they said was annoying to me" |
| "It forced me to have the conversation with [husband], 'This is what I want you to help me with. This is how I want you to do it, but don’t be overwhelming or overbearing about it.'" |
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| Components of FAMS-T1D worked individually and in combination to enhance dialogue and support |
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| Coaching showed value of asking for help and being held accountable to doing so: |
| "Talking to my coach showed me... there's a lot of people out there that are willing and wanting to support me through this journey with diabetes." |
| "Being held accountable for it... She’d always ask me if I had talked to anyone else." |
| Text messages to SP provided opportunities for support: |
| "Texts helped prompt the discussion...If you get a text while just hanging out, it gives you the opportunity to bring it up." |
| "The other party that was involved with it was getting text messages also. So, it was kind of - it wasn’t just like a one-sided thing. It was on both sides....the texts were really helpful in kind of keeping that conversation going to remind both parties. |
| Text messages and coaching worked in combination: |
| "Whenever I got a text... it helped bring me back to the goals I had set. When talking to my coach, usually I was told to maybe bring [my goal] up to my mom or somebody else. And so, I kind of pictured that as part of the goal...it just kind of came full circle." |
| "I might not particularly want to reach out too much because you might feel like 'oh, your diabetes is like your thing to control.' But then the texts were there as a reminder... some people were actually trying to help you and they can definitely support you. The coaching also helped...each session had a little homework...tell a couple of people about your goal...that was definitely helpful." |
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| Rare codes reported by <10% of sample are not reported. |