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. Author manuscript; available in PMC: 2024 Jan 1.
Published in final edited form as: Fatigue. 2023 Jan 1;11(2-4):55–65. doi: 10.1080/21641846.2022.2162764

Table 2.

DPSQ scores for parents reporting on pediatric participants with PASC during initial and current phases alongside participants with ME/CFS

PASC
(N = 19)
ME/CFS
(N = 19)

Domain/Symptom Initial Current

M (SD) M (SD) M (SD)
Sleep 41.71 (23.81) 40.00 (28.43) 56.58 (21.88)
 Unrefreshing Sleep 55.92 (27.75) 53.29 (36.52) 76.32 (20.37)ab
 Needing to Nap 41.45 (33.86) 32.89 (33.65) 35.53 (39.15)
 Difficulty Falling Asleep 45.39 (35.65) 51.32 (37.01) 76.97 (26.77)ab
 Difficulty Staying Asleep 39.47 (33.14) 37.50 (35.60) 52.63 (35.98)
 Waking up Early 26.32 (33.82) 25.00 (32.54) 41.45 (30.63)
PEM 55.26 (33.79) 46.71 (33.97) 65.92 (23.62)
 Heavy Feeling 47.37 (39.66) 51.32 (40.37) 60.53 (34.17)
 Mental Fatigue 52.63 (36.22) 46.71 (35.32) 63.16 (28.71)
 Minimum Exercise 63.16 (32.40) 52.63 (34.51) 75.00 (22.82)b
 Feeling Drained 61.84 (36.20) 41.45 (36.57) 65.79 (29.12)b
 Soreness 51.32 (36.30) 41.45 (37.51) 65.13 (26.54)b
Fatigue 68.42 (27.12) 59.87 (32.43) 73.03 (21.76)
Neurocognitive 23.98 (25.74) 23.30 (24.66) 43.15 (22.93)ab
 Difficulty Remembering 17.76 (27.42) 20.39 (29.82) 47.37 (24.85)ab
 Difficulty Paying Attention 37.50 (30.05) 30.26 (27.74) 59.21 (29.71)ab
 Trouble Forming Words 18.42 (28.68) 21.05 (30.63) 38.16 (25.16)a
 Difficulty Understanding 22.37 (23.41) 19.08 (22.19) 39.58 (28.84)b
 Difficulty Focusing 32.89 (29.82) 28.29 (31.96) 42.76 (32.36)
 Slowness of Thought 26.97 (36.39) 26.32 (31.70) 42.11 (28.32)
 Absent Mindedness 19.08 (29.86) 23.68 (24.61) 45.39 (26.42)ab
 Loss of Train of Thought 15.79 (28.82) 13.82 (20.79) 32.89 (28.02)b
 Trouble with Math/Numbers 22.92 (33.00) 25.69 (30.76) 40.13 (30.78)
Immune 22.59 (17.42) 17.11 (18.71) 24.89 (17.31)
 Sore Throat 37.50 (34.61) 23.68 (30.30) 30.26 (23.69)
 Lymph Nodes 22.37 (32.96) 15.79 (25.29) 20.39 (25.42)
 Fever 44.08 (31.83) 19.74 (20.55) 25.00 (22.44)a
 Sensitivity to Smells 18.42 (30.15) 09.87 (20.66) 32.24 (23.69)b
 Rash 06.58 (10.51) 21.05 (32.56) 16.45 (26.37)
 Allergies 06.58 (20.14) 12.50 (22.82) 25.00 (30.33)a
Neuroendocrine 30.08 (21.76) 20.02 (18.27) 35.15 (19.04)b
 Chills 31.58 (36.65) 18.42 (27.75) 34.21 (24.59)
 Feeling hot/cold 38.82 (35.57) 29.61 (31.24) 51.97 (19.21)b
 Night Sweats 25.66 (34.23) 18.42 (30.15) 30.26 (29.56)
 Sweating Hands 12.50 (27.00) 11.18 (22.40) 27.63 (30.21)
 Loss of Appetite 39.47 (30.69) 30.26 (32.63) 33.55 (22.07)
 Low Temperature 16.45 (26.70) 13.16 (21.44) 28.29 (22.38)b
 High Temperature 46.05 (37.51) 19.08 (20.99) 40.13 (29.04)b
Pain 31.16 (20.25) 26.20 (22.85) 35.53 (17.21)
 Muscle Pain 45.39 (31.24) 43.42 (30.72) 58.55 (27.34)
 Headaches 49.34 (32.93) 38.16 (26.18) 48.68 (28.84)
 Eye Pain 23.03 (31.25) 15.13 (27.19) 28.29 (27.27)
 Joint Pain 32.89 (39.79) 34.87 (40.31) 44.74 (34.44)
 Stomach Pain 50.66 (32.67) 32.89 (35.41) 51.32 (31.43)
 Chest Pain 21.71 (32.77) 22.37 (33.48) 34.87 (27.82)
 Twitching 09.21 (24.24) 12.50 (20.83) 19.74 (28.66)
 Upset Stomach 48.03 (30.97) 37.50 (34.86) 36.84 (21.44)
 Tinnitus 07.89 (23.65) 10.53 (26.77) 17.76 (23.69)
 Nausea 43.42 (34.70) 33.55 (36.10) 40.79 (25.29)
 Vomiting 11.18 (25.99) 07.24 (15.20) 09.21 (17.10)
Orthostatic 29.61 (31.64) 22.24 (25.01) 30.59 (22.54)
 Feeling Unsteady 26.97 (35.91) 23.68 (33.57) 32.89 (32.33)
 Shortness of Breath 29.61 (39.13) 21.05 (31.75) 35.53 (25.77)
 Dizziness 34.87 (35.74) 23.03 (33.40) 31.58 (24.07)
 Irregular heartbeat 26.32 (30.30) 22.37 (27.82) 27.08 (27.54)
 Weight Change 30.26 (38.49) 21.05 (34.62) 25.66 (31.03)
CDC 21.62 (21.44) 10.50 (12.92) -
 Dry Cough 29.61 (38.24) 07.89 (23.65) -
 Loss of Taste/Smell 17.11 (31.24) 01.32 (05.74) -
 Difficulty Breathing 22.37 (35.00) 13.82 (19.50) -
 Diarrhea 33.55 (36.57) 26.32 (35.08) -
 Nose Congestion 25.66 (23.38) 12.50 (25.34) -
 Loss of Hair 05.92 (20.57) 09.21 (16.05) -
 DSQ Total Scores 37.85 (20.04) 31.93 (20.44) 45.60 (14.49)b

Notes:

Bold numbers indicate significant differences between the two time points for participants with PASC.

a

Significant differences between PASC and ME/CFS at initial stage.

b

Significant differences between PASC and ME/CFS at current stage.

p < .05.