Table 2.

Examples from the coding process.

Posts and coding process	Subthemes	Themes
I had an attempt at repair a couple of years ago that was unsuccessful . Mine was very low and there was so much scar tissue it didn’t work	Unsuccessful surgical procedure	Challenges associated with treatments
To quote the surgeon I consulted “If I cut it out, I’d just create 10 more”	Unsuccessful surgical procedure
I’ve had a recurring fistula since September 2009	Recurring fistula	Challenges associated with treatments
I have a recurring perianal abscess with 3 fistula tracts	Recurring fistula
I hope you have found remission … good feeling knowing we are not alone	Peer support	Seeking/sharing online information
I learned so much from your lives and kindness	Peer support
“are thereany updates on your Stem Cell Treatment?!?”	Novel therapies	Seeking/sharing online information
“I was hoping tohear about advancement flap surgeries”	Treatments