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. 2023 Jul 21;31(3-4):135–155. doi: 10.1007/s10728-023-00461-z

Table 2.

Overview of the coding process

Theme Decision management: deciding on the spot or days later
Categories Multiplicity of trust Emotions
Subcategories Trust in doctors  Trust in the institution  Trust in the CT system Associated with HIV Associated with ART
Codes

Feeling emotionally supported and comfortable in consent dialogue

Humanized care

Feeling emotionally supported

Humanized care

Good reputation (both nationally and scientifically) vs bad reputation of the public health and social health insurance funds systems

Expectation of receiving extra/consistent care

Full availability of the physician/researcher

Management efficacy in monitoring

Antiretroviral clinical trial regimens are less toxic than regular care ones

Feeling vulnerable due to being recently diagnosed with HIV

Perception of being a guinea pig

Fear of progression to AIDS

There is no choice: you need treatment

Side-effect fatigue of previous antiretroviral treatment

Fear of adverse effects of CT treatment

Not giving in to fear of adverse effects

Theme  The importance of personal communication in informed consent
Categories  Explaining the informed consent: the human factor Unfriendly informed consent forms
Subcategories   Understandable consent dialogue   Unintelligible text  Frightening adverse effects Rights & duties 
Codes 

Clear and detailed information 

The guinea pig metaphor 

Resolving doubts 

Complete dialogue with physicians 

Scientific writing, not easy to read  

Not adapted to different education levels

Too long, too many pages

Too much information about adverse effects

Always focused on bad news

Who is responsible for the transition when leaving the CT