Table 3:

Epilepsy-related outcomes and health-care utilisation in the 2 years after an initial diagnosis

	Median (IQR)		Mean		p value
	Boston Children’s Hospital	IBM MarketScan	Boston Children’s Hospital	IBM MarketScan
Presence of a diagnosis of status epilepticus*	0 (0–0)	0 (0–0)	0·14 (0·35)	0·25 (0·43)	<0·0001
Number of inpatient admissions for all causes	0 (0–0)	0 (0–0)	1·57 (7·84)	0·91 (2·07)	<0·0001
Number of inpatient admissions for seizures	0 (0–0)	0 (0–0)	0·37 (1·25)	0·34 (0·84)	0·013
General utilisation; number of distinct days with ICD code	7 (3–15)	17 (14–37)	12·82 (19·89)	25·78 (37·78)	<0·0001
Seizure-related utilisation; number of distinct days with seizure-related ICD codes	2 (0–6)	3 (2–10)	4·13 (5·97)	6·40 (14·02)	<0·0001
Number of ASM classes (mean of those receiving at least 1 ASM)	1 (0–2)	1 (0–2)	1·36 (1·79)	1·41 (1·71)	0·17
Number of neurology notes during epilepsy-related ICD visit	3 (1–8)	NA	6·61 (10·90)	NA	NA
Number of seizure-related imaging and procedures	0 (0–1)	0 (0–1)	0·84 (2·35)	0·86 (2·41)	>0·25
Composite score (meeting any of the criteria defined in panel)	1 (0–1)	1 (0–1)	0·57 (0·50)	0·63 (0·48)	<0·001

Data are median (IQR) or mean (SD). ICD=International Classification of Diseases. ASM=antiseizure medication. NA=not available.

^*1=present, 0=absent; mean represents proportion of patients with diagnosis.