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. 2023 Nov 23;25:e47066. doi: 10.2196/47066

Table 1.

Attributes and levels included in the discrete choice experiment.

Attribute and level Description
Data collector

Health care provider Your health care provider (hospital or general practitioner) who collected health information about your care.

Technological company A technological company with which you used a service, program, or application for a phone or computer.

Academic research project An academic research project where you participated and health information about you was collected.
Data user

National authority A national authority like the public health authority or information and commissioner’s office, which is responsible for the population’s health.

Technological company A technological company that develops health applications, which can be used to predict diagnosis.

Pharmaceutical company A pharmaceutical company that develops and manufactures new medicines.

Academic research project An academic research project that produces new knowledge by testing hypotheses and theories about human health.
Reason for data use

Quality evaluation Evaluate the quality of the data user’s product or service and plan for resource allocation.

Development of a new product or service Develop new products or services, such as medical devices, drugs, or applications for phones, or new health services or programs.

Promotion, advertising, and marketing Promoting, advertising, and marketing products or services to personalize communications.

Investigating policy initiative Investigating policy initiatives at the national level. The investigation could improve services for a specific part of the population or identify new measures to improve public health.
Information on data sharing and consent

Informed and consent Informed and asked to consent that health information about you is being shared and used in a new context.

Not informed Not informed that health information about you is being shared and used in a new context.

Informed Informed that health information is being shared and used in a new context.

Informed and ability to opt-out Informed that health information is being shared and used in a new context and you are offered to opt-out.
Availability of review process

Review of transfer and use A committee will review the transfer and use of your health information in a new context.

No review No review of data sharing.

Review of transfer A committee will review the transfer of your health information to a new context.