Table 1.
Attributes and levels included in the discrete choice experiment.
Attribute and level | Description | |
Data collector |
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Health care provider | Your health care provider (hospital or general practitioner) who collected health information about your care. |
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Technological company | A technological company with which you used a service, program, or application for a phone or computer. |
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Academic research project | An academic research project where you participated and health information about you was collected. |
Data user |
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National authority | A national authority like the public health authority or information and commissioner’s office, which is responsible for the population’s health. |
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Technological company | A technological company that develops health applications, which can be used to predict diagnosis. |
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Pharmaceutical company | A pharmaceutical company that develops and manufactures new medicines. |
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Academic research project | An academic research project that produces new knowledge by testing hypotheses and theories about human health. |
Reason for data use |
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Quality evaluation | Evaluate the quality of the data user’s product or service and plan for resource allocation. |
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Development of a new product or service | Develop new products or services, such as medical devices, drugs, or applications for phones, or new health services or programs. |
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Promotion, advertising, and marketing | Promoting, advertising, and marketing products or services to personalize communications. |
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Investigating policy initiative | Investigating policy initiatives at the national level. The investigation could improve services for a specific part of the population or identify new measures to improve public health. |
Information on data sharing and consent |
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Informed and consent | Informed and asked to consent that health information about you is being shared and used in a new context. |
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Not informed | Not informed that health information about you is being shared and used in a new context. |
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Informed | Informed that health information is being shared and used in a new context. |
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Informed and ability to opt-out | Informed that health information is being shared and used in a new context and you are offered to opt-out. |
Availability of review process |
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Review of transfer and use | A committee will review the transfer and use of your health information in a new context. |
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No review | No review of data sharing. |
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Review of transfer | A committee will review the transfer of your health information to a new context. |