Table 6.

1‐year follow‐up questions

Question	Answer	n (%)
“Since you finished the PALS program, have you talked about lupus clinical trials with your health care provider?”	Yes	18 (36.73)
	No	31 (63.27)
“About how many times did you talk to your doctor about clinical trials?”	One to three times	17 (35.42)
	3 to 5 times	1 (2.08)
	6 or more times	3 (6.25)
	I have not talked to my doctor about clinical trials since I finished the PALS program	27 (56.25)
“Since you finished the PALS program, has your doctor given you a referral to a lupus clinical trial?”	Yes	6 (12.24)
	No	43 (87.76)
“Since you finished the PALS program, have you called a clinical trial site about being in a clinical trial?”	Yes	13 (26.53)
	No	36 (73.47)
“Since you finished the PALS program, have you been screened for a lupus clinical trial?”	Yes	8 (16.67)
	No	40 (83.33)
“Since you finished the PALS program, have you enrolled in a lupus clinical trial?”	Yes	5 (10.20)
	No	44 (89.80)

Note: Intervention group only, n = 49.

Abbreviation: PALS, Patient Advocates for Lupus Studies.