Table 1.
Patient Advisory Council (PAC) composition and structure.
| Demographic characteristics | Number within the PAC |
|---|---|
| PAC role | |
| Patient research partner | 8 |
| Academic research partner | 2 |
| Age, years | |
| 18–29 | 3 |
| 30–49 | 2 |
| 60–64 | 4 |
| 65+ | 1 |
| Gender | |
| Man | 2 |
| Woman | 8 |
| Race | |
| East Asian | 1 |
| South Asian | 2 |
| Southeast Asian | 1 |
| White | 6 |
| English as a first language | |
| Yes | 6 |
| No | 4 |
| Living with a chronic health condition? | |
| Yes | 9 |
| No | 1 |
| Research experience | |
| New to research | 1 |
| Moderate research experience | 5 |
| Extensive research experience | 3 |
| Prefer to not say | 1 |
Based on a total of 10 survey responses from all PAC members which includes eight patient research partners.